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Clinical Trials Research

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Observational and interventional medical research programs that are currently looking for patients with specific diseases or conditions or related health profiles who are willing to volunteer to help determine the safety, effectiveness, dosage requirements and side effects of new drugs, medical products or techniques. (AIRS LT-1530.1550)

Undiagnosed Diseases Network, National Institutes of Health Common Fund View on Map
9000 Rockville Pike
Bethesda, MD 20982
Service Categories:
Organization Name: National Institutes of Health Common Fund
(Show others in Organization)
Address:
9000 Rockville Pike
Bethesda, MD 20982
Toll Free Phone: 844-746-4836
Service Categories:
Clinical Trials Research
National Support Services, Disab/Diag
Email: UDN@hms.harvard.edu
URL: https://undiagnosed.hms.harvard.edu/
Services Provided:

Undiagnosed Diseases Network (UDN) is a research study that seeks to provide answers for patients and families affected by mysterious conditions. Clinical sites located throughout the U.S.
Source: MHP-Nationwide
Last Updated: 5/7/2022
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Pancreatic Cancer Action Network View on Map
1500 Rosecrans Avenue Ste 200
Manhattan Beach, CA 90266
 Phone: 310-725-0025
Service Categories:
Address:
1500 Rosecrans Avenue Ste 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Toll Free Phone: 877-272-6226
Fax: 310-725-0029
Service Categories:
Clinical Trials Research
Specialized Information Resources
Email: info@pancan.org
URL: https://www.pancan.org/
Services Provided: Provides research, patient support, community outreach, and government advocacy. Raises money for direct private funding of research. Supports individuals and communities all across the country in working together to raise awareness and funds to develop more effective treatment options for better patient outcomes. The programs aims to create a sense of hope and community so no one has to face pancreatic cancer alone.COVID-19 Update: following all CDC and state guidelines.

  • Clinical Trials
  • Disease/Disability Information
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
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SPARK Autism Research, Simons Foundation View on Map
PO Box 1806
New York, NY 10159
Service Categories:
Organization Name: Simons Foundation
(Show others in Organization)
Address:
PO Box 1806
New York, NY 10159
Service Categories:
Clinical Trials Research
Email: info@SPARKforAutism.org
URL: https://www.sparkforautism.org/
Services Provided: SPARK works with research partners from all over the world to engage families and adults with autism in research studies. All of the studies are evaluated for scientific merit, and a SPARK scientific committee approves them. SPARK matches participants with research studies based on characteristics such as age, diagnosis, medical history, location and more. Some of these studies are online, and some are in person.

SPARK does not share any information with researchers until participants give their permission. Participants in SPARK are always in control.
Provider Profiles: Simons Foundation Powering Autism Research for Knowledge (SPARK)
Source: MHP-Nationwide
Last Updated: 1/6/2020
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National Institute of Diabetes and Digestive and Kidney Diseases, National Institutes of Health View on Map
3 Information Way
Bethesda, MD 20892-3580
 Phone: 800-860-8747
Service Categories:
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
TDD: 866-569-1162
Service Categories:
Clinical Trials Research
Education About Disabilities/Diagnoses
Specialized Information Resources
Email: healthinfo@niddk.nih.gov
URL: https://www.niddk.nih.gov/
Eligibility: Contact for specific information.
Services Provided:

NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.
Source: Nationwide Suggest Providers Queue
Last Updated: 9/18/2020
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Cure SMA View on Map
925 Busse Road
Elk Grove Village, IL 60007
Service Categories:
Address:
925 Busse Road
Elk Grove Village, IL 60007
Toll Free Phone: 800-886-1762
Service Categories:
Clinical Trials Research
Medical Equipment/Supplies
National Support Services, Disab/Diag
Email: info@curesma.org
URL: https://www.curesma.org/
Eligibility:

Individuals with spinal muscular atrophy (SMA)
Services Provided:

Funds and directs comprehensive research that drives breakthroughs in treatment and care, and provides families the support they need. Local and national programs.

Services Include:

  • An equipment pool loans medical equipment free of charge
  • Annual conference
  • Web-based location finder for support in your area
Source: MHP-Nationwide
Last Updated: 5/7/2022
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