Clinical Trials Research

Provide Feedback

Observational and interventional medical research programs that are currently looking for patients with specific diseases or conditions or related health profiles who are willing to volunteer to help determine the safety, effectiveness, dosage requirements and side effects of new drugs, medical products or techniques. (AIRS LT-1530.1550)

Service Legend
Local Service
Statewide Service: Provides online resources, telehealth, or service at a satellite office.
Nationwide Service: Provides online resources, telehealth or services at a regional/national headquarters location.
Nationwide Provider
3015 East New York Street, Suite A2 #285
Aurora, IL 60504
Nationwide Provider
Address:
3015 East New York Street, Suite A2 #285
Aurora, IL 60504
Toll Free Phone: 800-432-6435
Fax: 630-978-7408
Email: info@angelman.org
Services Provided:

Provides resources and support for individuals and families living with Angelman Syndrome. Offers a Family Resource Team to help find needed resources; educational programs and Angelman Syndrome Resources. 

Angelman Collaborative Research Partnership- notes two studies, one related to identifying biomarkers that could be used to assess the effects of drugs on AS and the other evaluating measures and technologies related to problems areas such as sleep, communication, and brain activity.

Angelman Syndrome Foundation Contact Registry- asks for contact and demographic data for individuals with Angelman syndrome and their families so they can: notify potential participants about Angelman research trials and alert families about recent events and research findings.

Source: MHP-Nationwide
Last Updated: 9/8/2022
Nationwide Provider
9000 Rockville Pike
Bethesda, MD 20982
Nationwide Provider
Organization Name: National Institutes of Health Common Fund
(Show others in Organization)
Address:
9000 Rockville Pike
Bethesda, MD 20982
Toll Free Phone: 844-746-4836
Email: UDN@hms.harvard.edu
Services Provided:

Undiagnosed Diseases Network (UDN) is a research study that seeks to provide answers for patients and families affected by mysterious conditions. Clinical sites located throughout the U.S.

Source: MHP-Nationwide
Last Updated: 5/7/2022
Nationwide Provider
1500 Rosecrans Avenue Ste 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Nationwide Provider
Address:
1500 Rosecrans Avenue Ste 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Toll Free Phone: 877-272-6226
Fax: 310-725-0029
Email: info@pancan.org
Services Provided: Provides research, patient support, community outreach, and government advocacy. Raises money for direct private funding of research. Supports individuals and communities all across the country in working together to raise awareness and funds to develop more effective treatment options for better patient outcomes. The programs aims to create a sense of hope and community so no one has to face pancreatic cancer alone.COVID-19 Update: following all CDC and state guidelines.

  • Clinical Trials
  • Disease/Disability Information
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
PO Box 1806
New York, NY 10159
Nationwide Provider
Organization Name: Simons Foundation
(Show others in Organization)
Address:
PO Box 1806
New York, NY 10159
Toll Free Phone: 844-547-7275
Service Categories:
Email: info@SPARKforAutism.org
Services Provided:

Works with research partners from all over the world to engage families and adults with autism in research studies. All of the studies are evaluated for scientific merit, and a SPARK scientific committee approves them. SPARK matches participants with research studies based on characteristics such as age, diagnosis, medical history, location and more. Some of these studies are online, and some are in person.

SPARK does not share any information with researchers until participants give their permission. Participants in SPARK are always in control.

Provider Profiles:

Simons Foundation Powering Autism Research for Knowledge (SPARK)

Source: MHP-Nationwide
Last Updated: 9/10/2022
Nationwide Provider
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
TDD: 866-569-1162
Email: healthinfo@niddk.nih.gov
Eligibility: Contact for specific information.
Services Provided:

NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.

Source: Nationwide Suggest Providers Queue
Last Updated: 9/18/2020
Cure SMA View on Map
Nationwide Provider
925 Busse Road
Elk Grove Village, IL 60007
Nationwide Provider
Address:
925 Busse Road
Elk Grove Village, IL 60007
Toll Free Phone: 800-886-1762
Email: info@curesma.org
Eligibility:

Individuals with spinal muscular atrophy (SMA)

Services Provided:

Funds and directs comprehensive research that drives breakthroughs in treatment and care, and provides families the support they need. Local and national programs.

Services Include:

  • An equipment pool loans medical equipment free of charge
  • Annual conference
  • Web-based location finder for support in your area
Source: MHP-Nationwide
Last Updated: 5/7/2022
Nationwide Provider
196 Richmond Street
Providence, RI 02903
Phone: 401-793-8950
Nationwide Provider
Organization Name: Weight Control and Diabetes Research Center
(Show others in Organization)
Address:
196 Richmond Street
Providence, RI 02903
Phone: 401-793-8950
Toll Free Phone: 1-800-606-6927
Service Categories:
Email: aalmeida1@lifespan.org
Eligibility:

Adolescents (ages 14-20) must have lost a minimum of 10 pounds as teenagers and maintained this weight loss for at least 1 year.

Services Provided:

Provides a questionnaire and interview study to learn more about adolescent weight loss and maintenance. Adolescents will complete questionnaires and a brief interview regarding their weight loss experience. Parent participation is also encouraged, but not required. Adolescents and parents will be compensated for their time.

Source: Nationwide Suggest Providers Queue
Last Updated: 8/24/2022
Nationwide Provider
National Institutes of Health (NIH)
9000 Rockville Pike
Bethesda, MD 20892
Phone: 301-827-0905
Nationwide Provider
Organization Name: National Institute on Alcohol Abuse and Alcoholism
(Show others in Organization)
Address:
National Institutes of Health (NIH)
9000 Rockville Pike
Bethesda, MD 20892
Phone: 301-827-0905
Service Categories:
Email: NIAAASHPResearch@mail.nih.gov
Services Provided:

Conducts various alcoholism research studies at the NIH campus in Bethesda, Maryland. While participating in medical research, you will receive standard treatment for alcoholism, which includes motivational and cognitive behavior therapies; individual, group and family counseling; and an option of attending self-help groups such as AA and more.

Source: Nationwide Suggest Providers Queue
Last Updated: 9/14/2022
Nationwide Provider
8600 Rockville Pike
Bethesda, MD 20894
Nationwide Provider
Organization Name: U. S. National Library of Medicine
(Show others in Organization)
Address:
8600 Rockville Pike
Bethesda, MD 20894
Service Categories:
Services Provided:

Provides listing of clinical trials including Angelman syndrome and others. 

Source: Nationwide Suggest Providers Queue
Last Updated: 9/21/2022