Health Related Advocacy

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Organizations that are dedicated to protecting and improving the quality and affordability of health care for all individuals and advocating for changes that will achieve these goals. (AIRS TD-1600.2570 Health Related Advocacy Groups) Includes voluntary organizations committed to empowering and enhancing the lives of individuals with disability/diagnosis-specific conditions and their families through support and public awareness.

Service Legend
Local Service
Statewide Service: Provides online resources, telehealth, or service at a satellite office.
Nationwide Service: Provides online resources, telehealth or services at a regional/national headquarters location.
400 Gold Ave SW floor 7
Albuquerque, NM 87102
Phone: 505-224-2766
Address:
400 Gold Ave SW floor 7
Albuquerque, NM 87102
Phone: 505-224-2766
Email: info@eqnm.org
Services Provided:

Equality New Mexico will Work Toward LGBTQ Liberation until queer And trans New Mexicans are represented everywhere decisions are being made. We aim to be a trusted partner, and to uplift the voices and leadership of our community in creating a reality of equity, full access, and sustainable wellness for LGBTQ New Mexicans. Equality New Mexico Provides the Statewide Movement Building, Trans Community Advocacy, Political Advocacy + Leadership Development, Community Wellness + Quality of Life; & Financial Sustainability. Interested parties can additionally call this toll free line: Toll free: (1-855-542-8766).

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/29/2022
Statewide Provider
1380 Rio Rancho Blvd
Rio Rancho, NM 87124
Phone: 505-379-4624
Statewide Provider
Address:
1380 Rio Rancho Blvd
Rio Rancho, NM 87124
Phone: 505-379-4624
Email: elevatethespectrum@gmail.com
Services Provided:

Elevate the Spectrum empowers communities to elevate individuals on the autism spectrum and their families through inclusion, advocacy, and friendship. We also host educational, inclusive events and programs for New Mexico’s Autism Community. Events Page: https://elevatethespectrum.org/events/

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/29/2022
Statewide Provider
5301 Central Ave NE, Suite 900
Albuquerque, NM 87108
Phone: 505-841-5524
Statewide Provider
Organization Name: NM Department of Health (DOH), Developmental Disabilities Supports Division (DDSD)
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Address:
5301 Central Ave NE, Suite 900
Albuquerque, NM 87108
Phone: 505-841-5524
Services Provided:

The Advisory Council on Quality supports people with Intellectual/Developmental Disabilities (ACQ). They advise the New Mexico Department of Health on the systems guiding the provision of services and supports that assist people with Intellectual/Developmental Disabilities (IDD) of all ages and their families to be fully included in New Mexico communities. The purpose of the ACQ is to provide advisory counsel to the Department about the needs of people with IDD, their families and support networks.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 10/3/2022
Statewide Provider
PO Box 6759
Albuquerque, NM 87197
Phone: 505-382-5061
Statewide Provider
Address:
PO Box 6759
Albuquerque, NM 87197
Phone: 505-382-5061
Email: info@rgdsn.org
Services Provided:

The Rio Grande Down Syndrome Network is a nonprofit organization whose mission is to empower individuals with Down syndrome and their families through advocacy, education, and support. They are a collaborative network that seeks to create awareness, assure inclusion, and promote independence in individuals with Down syndrome.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 9/27/2022
Statewide Provider
PO Box 91413
Albuquerque, NM 87199
Statewide Provider
Address:
PO Box 91413
Albuquerque, NM 87199
Email: info@lexiamheartfoundation.org
Services Provided:

The mission of Lexiam Heart Foundation is to provide support to children and families affected by Congenital Heart Defects (CHD), with priority given to families residing in New Mexico, through financial assistance, community resources to support education and emotional wellness, and to raise public awareness of Congenital Heart Defects.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/30/2022
Statewide Provider
2300 Menaul Blvd NE
Albuquerque, NM 87107
Statewide Provider
Organization Name: University of New Mexico (UNM), Center for Development and Disability (CDD)
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Address:
2300 Menaul Blvd NE
Albuquerque, NM 87107
Fax: 505-272-2014
Email: HSC-NM-LEND@salud.unm.edu
Services Provided:

The Leadership Education in Neurodevelopmental and Related Disabilities (LEND) interdisciplinary traineeship develops trainees' expertise in understanding, working in partnership with, and advocating for individuals with developmental disabilities and their families. The training includes seminars on Fridays and additional activities throughout two semesters and uses evidence-based materials, case studies, problem-based learning, experiential activities and project activities. The interactive seminars are provided in conjunction with a two-day orientation, leadership and public policy workshops, required readings, assignments, book and journal club, webinars, family visits, and a capstone project that embeds leadership and research skills. Trainees can expect to spend 300 hours participating in LEND seminars and completing assignments and activities. The traineeship includes a stipend (dependent on federal grant funding). LEND accepts graduate students, family members of individuals with disabilities, self-advocate leaders and practicing professionals from many disciplines.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 10/3/2022
Statewide Provider
3915 Carlisle Blvd NE
Albuquerque, NM 87107
Phone: 505-255-8234
Statewide Provider
Address:
3915 Carlisle Blvd NE
Albuquerque, NM 87107
Phone: 505-255-8234
Service Categories:
Email: swida@southwestida.org
Services Provided:

IDA is the oldest such organization in the U.S. serving individuals with dyslexia, their families, and professionals in the field. IDA focuses resources in four essential areas, Information & Referral Services, Research, Advocacy & Public Policy, Professional Development. IDA as an information provider and a world-wide publisher. In addition, they fund research on neurological, educational and developmental issues as they relate to dyslexia. IDA advocate for the rights of individuals with dyslexia both through the legal and Federal legislative systems.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 10/3/2022
Nationwide Provider
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Nationwide Provider
Address:
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Toll Free Phone: 800-342-2383
Services Provided:

Provides objective and credible information, advocacy and research for diabetes. Website offers education, legal rights, health insurance, tips for caregivers, etc. Provides camps for children with Type I diabetes and with or at risk of developing Type II diabetes.

Source: MHP-Nationwide
Last Updated: 5/9/2022
Nationwide Provider
3817 Tuesday Way
Louisville, KY 40219
Phone: 502-905-0869
Nationwide Provider
Address:
3817 Tuesday Way
Louisville, KY 40219
Phone: 502-905-0869
Toll Free Phone: 800-733-2258
Email: cclvipresident@cclvi.org
Services Provided:

Provide support, resources, education, and advocacy for those who are impacted by low vision and visual impairment.

Source: Nationwide Suggest Providers Queue
Last Updated: 5/7/2022
Nationwide Provider
P.O. Box 525
Kennebunk, ME 04043
Nationwide Provider
Address:
P.O. Box 525
Kennebunk, ME 04043
Toll Free Phone: 800-826-0826
Email: susanburns@ostomy.org
Services Provided:

Promotes quality of life for people with ostomies and continent diversions through information, support, advocacy, and collaboration. Hosts a national network for bowel and urinary diversion support groups in the United States. 

Source: Nationwide Suggest Providers Queue
Last Updated: 5/7/2022
Nationwide Provider
1500 Dawson Road
Merry Acres Executive Building
Albany, GA 31707
Phone: 229-518-2680
Nationwide Provider
Address:
1500 Dawson Road
Merry Acres Executive Building
Albany, GA 31707
Phone: 229-518-2680
Toll Free Phone: 888-432-7899
Fax: 229-518-3879
Email: info@mendedhearts.org
Eligibility:

Patients and families of children with congenital heart disease.

Services Provided:

Provides ongoing peer-to-peer support, education, and advocacy to heart patients and their families. Local chapter locator available on website.

Services Include:

  • peer support and education
  • education resources
  • hospital outreach
  • CHD awareness
  • community health education
  • online community
  • advocacy
Source: Nationwide Suggest Providers Queue
Last Updated: 5/7/2022