Resources of the Month 2019

UCCCN December 2019 Resources of the Month
Presentation : Katrina Jensen and Stephanie Sund from Intermountain Children's Health - following the November AYA Transition Summit, they will be connecting with the community to gather input and provide support in helping patients transition to adult providers.
Case : 26 yo young man with Down Syndrome and many other very complex conditions needs an adult provider; has Medicaid. The HOME program at UNI was suggested.

UCCCN October 2019 Resources of the Month
Presentation: The University of Utah's Project ECHO and specifically the Pediatric TeleECHO which happens every Wed. Care Coordinators and their teams are encouraged to attend and submit cases.
Case: a nonverbal 6 yo refugee boy, no medical diagnosis for autism, enrolled in a local school district, confirmed that he is eligible for 6 months Medicaid/Medicare coverage for refugees.

UCCCN September 2019 Resources of the Month
Presentation: On FERPA and HIPAA, "Confidentiality of Information Related to Special Education and Clinical Services," Travis Hamblin and Dr. Fulvia Franco, Jordan School District.
Cases: included helping a young girl replace a stolen bike to aid in getting to school as a obesity management strategy; help dealing with insurance claims after the death of a child; a new wish-granting service provider

UCCCN August 2019 Resources of the Month
Presentation: Presentation from Utah Parent Center parent consultant Amy Hurst discussed the Multi-tiered System of Support or MTSS, how it is intended to work, and how it can benefit any/all students both academically and behaviorally. Being implemented in Utah school districts at various rates and levels.
Cases: included an adolescent in the Blanding area with serious behavioral health issues, needs stabilization until an assessment can be done in 2 weeks; a 12 year old with complex medical issues and a lack of resources in a rural area, needs a trach aide to attend school but none is available.

UCCCN July 2019 Resources of the Month
Presentation: Director of the Utah Dept of Human Services' System of Care presented on what it is: "A wide spectrum of effective, community-based services and supports for children, youth and young adults with or at risk of mental health or other challenges and their families."
Case: included clarification of what clinical services UDOH CSHCN is providing in Provo (mainly autism diagnosis and related); and how school assessments are for IDEA services while a medical assessment is needed for outside services.

UCCCN June 2019 Resources of the Month
Presentation: Presentation by the James Mason Centers for Recovery clinical director on Levels of Mental and Behavioral Health Care: when, how to refer, and risk criteria. Inpatient, Residential, Day Treatment/Partial Hospitalization, Intensive Outpatient.
Cases: included looking for a company/provider for special needs car seats; need lipid screens for kiddos with high cholesterol sooner than 6 month wait list.

UCCCN May 2019 Resources of the Month
Presentation: Presentation on the new SPARK project for families with autism; free genetic testing. Talk by Eric Stokes (young adult with autism) on Being a Self-Advocate. Brainstorming on overcoming barriers to improve autism screening & care in our practices.
Cases: included getting a variance for a child to attend a different school district; the difficulties of needing a SS evaluation being homebound and not speaking English; getting services for adolescent refugees; ideas for tracking moms with NAS/NOWS babies?

UCCCN April 2019 Resources of the Month
Presentation: Colin Kingsbury, CSHCN Autism Systems Program Manager presented on autism prevalence in Utah, two screening initiatives beginning soon through Autism Council of Utah. Small groups workshop to identify opportunities in practices to improve autism screening, diagnosis and follow-up.
Cases: an adopted child has TBI and the family needs help with MRI cost, above income for Medicaid; 9 yr-old non-US citizen with Angelman, brain and GI issues, not eligible for children’s Medicaid waiver, school services are not sufficient; family needs tracking device for a child who wanders, can get around door alarms, has sensory issues so won’t wear bracelet or collar but will wear shoes.

March 2019 UCCCN Learning Session Summary (PDF Document 152 KB)
Annual Learning Session: The topic was "Legal Issues and Services for Families with Children and Youth with Special Health Care Needs"

UCCCN February 2019 Resources of the Month (PDF Document 120 KB)
Presentation: Infant and Early Childhood Mental Health - what it is, when intervention is needed, treatment options. Dr. Jennifer Mitchell and Jamie Sellers from the Children's Center presented
Cases: a 17 yo young man with cognitive disabilities who gets combative in testing situations needs x-rays; 17 yo young man with Down Syndrome, mother just died, needs therapy; 8 yo boy with autism can be severely violent.

UCCCN January 2019 Resources of the Month (PDF Document 132 KB)
Presentation: Services provided by Safe and Healthy Families and the Children’s Justice Center, and Mandatory Reporting of Abuse, Neglect and Dependency. Presented by Dinah Weldon, MPA, Director; Kari Cunningham, LCSW
Cases: nonverbal 17 yr old w autism in a foster home, OK’d for 4 hours of weekly community service, needs 2 trained people to accompany him; a transitioning female senior with autism in high school, high functioning, looking for an after-school day treatment and a job; 12 yr old boy, mentally disabled, with drop seizures, g-tube, ADHD, autism, looking for aquatic therapy.

Authors & Reviewers

Initial publication: February 2019; last update/revision: August 2019
Current Authors and Reviewers:
Author: Mindy Tueller, MS, MCHES