Pediatric Specialty Care for Children and Youth with Special Health Care Needs, Developmental Disabilities, and Medical Complexity. Provides a nurturing and supportive environment to care for children (birth to 21 years old) with Special Needs, Developmental Disabilities and/or Complex Care in Albuquerque and throughout New Mexico. Appointments in clinic for 20-60 minutes as needed New Patient Appointments 60 minutes. Consulting and Referrals made, ordering tests, and order blood work as needed. Telephone/Telehealth appointments offered. Patients will need to stay with their Primary Care Providers for sick care, emergencies, immunizations, after hours care, etc.

Residents of New Mexico, anyone under age 21 is eligible if diagnosed with chronic medical conditions or disabilities that require surgical or medical treatment or limit activities. For CMS payment/coverage, there are also financial guidelines.

These conditions are automatically qualifying:

• Cancer
• Cardiac Disease
• Cerebral Palsy
• Cleft Lip & Palate
• Cystic Fibrosis
• Diabetes
• Epilepsy with Seizure Medications
• Juvenile Rheumatoid Arthritis
• Lupus
• Renal Failure
• Spina Bifida

Adults are eligible if they have genetic/metabolic or cystic fibrosis who are eligible for lifelong services.

CMS offers medical services through multidisciplinary pediatric specialty clinics, private providers and public agencies. Diagnostic medical services, information and referral, case management and pre-school developmental evaluations are also available, regardless of income.

Service Include:

• Medical Management- may include payment for diagnostic services, hospitalizations, physician’s services, and some therapies.
• Multidisciplinary Pediatric Specialty Clinics- including asthma, cleft palate, genetic, metabolic, nephrology, neurology, and endocrinology clinics
• Care Coordination
• Transition Planning for Youth with Special Health Care needs
  Newborn Genetic Screening and Follow-up & Newborn Hearing Screening and Follow-up

The UNM CDD Medically Fragile Case Management Program (MFCMP) has offered registered nurse case management/service coordination services statewide for children who are medically fragile and their families since 1985. In New Mexico, medically fragile children are identified as children who have a high level of dependence on medical technology such as ventilators, tracheostomies, oxygen, feeding tubes, dialysis and intravenous medication and require total care for all their daily needs. The case managers at MFCMP use a family-centered approach to care and are advocates, informational sources, facilitators and paperwork coordinators for families. Case managers support parents as team leaders who address the day-to-day care of their child.

See children of all ages – from newborns to patients up to 21 years old.

Provides special care for children with chronic medical condition.

Conditions Treated:

• Cerebral palsy
• Congenital heart defects
• Genetic syndromes
• Premature babies with lung, eye or feeding issues
• Short bowel syndrome (SBS), or short gut syndrome.

The Continuum of Care project grew out of the idea that health care services should be available and delivered in a comprehensive and coordinated manner from infancy to adulthood, assuring people with disabilities access to the full array of health services from a multidisciplinary approach. COC provides consultations to New Mexicans with developmental disabilities; trains medical students, doctors, nurses, social workers and others; and assists persons with developmental disabilities in a variety of other ways.

Only accessible to professionals involved in care and policy for children with medical complexity.

Hosts a nationwide forum to be used by providers, programs and organizations that are part of the pediatric complex care listserv. Tools include a complex care listserv and a directory of programs.