Education About Disabilities/Diagnoses

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Programs that offer workshops, discussion groups, activities and other types of training that sensitize participants to people with disabilities, visible differences, and mental health and mental illness. Includes information for individuals and families with these conditions, as well as information to help others experience what it is like to have a disability, and share techniques for positive communication and interaction with people who have disabilities. (Adapted from AIRS PH-6200.1850 Disability Awareness Programs )

801 Encino Place NE, Building G
Albuquerque, NM 87102
Phone: 505-272-1312
Service Categories:
Address:
801 Encino Place NE, Building G
Albuquerque, NM 87102
Phone: 505-272-1312
Email: THSinfo@unmmg.org
Services Provided:

UNM Truman Health Services is a National Committee for Quality Assurance Level 3 Patient-Centered Medical Home. This means our patients always come first. We strive to meet your needs, whether they come before, during, or after hours. Get comfortable, confidential care at UNM Health Services. Whether you need testing, treatment, or primary care, our team of doctors, nurses and behavioral health specialists are here to help.

UNM Truman Health Services provided include:

  • Primary and specialty care for people with HIV
  • Medication adherence, education, and counseling
  • Counseling and psychotherapy
  • Diagnostic assessments
  • Medication management
  • Neuropsychological assessment
  • Psychiatric consultation
  • Substance use treatment and referral services
  • Medical and non-medical case management
  • Social support services
  • Chiropractic, acupuncture, and medical-massage
  • Clinical nutrition
Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
1422 Paseo de Peralta
Santa Fe, NM 87501
Phone: 505-982-5565
Service Categories:
Address:
1422 Paseo de Peralta
Santa Fe, NM 87501
Phone: 505-982-5565
Fax: 505-986-8299
Services Provided:

At Presbyterian Medical Services, we believe that the best way to improve community health and well-being is for everyone to work together. To that end, we work collaboratively with community groups, school districts, local providers, hospitals and governments at every level. Together, we develop programs and services that meet the needs of the people living within these communities. And we only expand into communities that invite our involvement.

Our diverse services include primary care, dental, behavioral health, early childhood education, supportive living, and senior programs. To make the greatest impact possible, we concentrate our resources on meeting the needs of underserved areas of New Mexico.

All told, we operate approximately 100 programs in communities throughout the state. Many of the individuals served by Presbyterian Medical Services live at or below the federal poverty level.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
1010 Spruce St.
Española, NM 87532
Phone: 505-753-1510
Service Categories:
Address:
1010 Spruce St.
Española, NM 87532
Phone: 505-753-1510
Services Provided:

Services: Home visits encourage the development of skills and knowledge around infant growth and development, nurturing positive relationships, and creating safe environments. Serves prenatal to 3 years of age.

Eligibility/Ages: Prenatal or newborn under 2 months of age. Available to women having their first child, first-time families, and families adopting their first baby. Serves Rio Arriba County.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
625 Silver SW, Suite 200
Albuquerque, NM 87105
Phone: 505-243-2333
Service Categories:
Address:
625 Silver SW, Suite 200
Albuquerque, NM 87105
Phone: 505-243-2333
Services Provided:

To establish a Family Advocacy Center where adult and child victims of interpersonal violence and sexual assault have access to comprehensive, multi-disciplinary services. The focus of the Albuquerque Family Advocacy Center will be to decrease victim trauma and intimidation while providing supportive services in respectful and culturally appropriate ways.

Advantages of a Family Advocacy Center:
a. Victim friendly and victim safe environment (no suspects).
b. Reduces the investigation time for all agencies involved.
c. Reduces the number of interviews from as many as five to one per case, while at the same time increasing the quality of investigations.
d. Eliminates travel time for victims and significantly reduces travel for all service providers.
Improves coordination of multi-disciplinary teams: medical evaluation, forensic, interviews, law enforcement, child/adult protective service investigations, crisis counseling and prosecution.
e. Makes it possible to eliminate language and cultural barriers to service across all service systems.
f. Increases the number of convictions, guilty pleas and plea bargains through the appropriate prosecutorial divisions.

For after hours assistance:

FOR EMERGENCIES, PLEASE CALL 911
For Non-emergencies, please call (505) 243-2333
After hours, the Albuquerque Family Advocacy Center phone number (505) 243-2333 will be answered by victim advocates who can assist or make referrals to address your crisis situation. For basic or non-emergency contact with service providers please call back Monday through Friday, 8:00 am to 5:00 pm.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
625 Silver SW, Suite 190
Albuquerque, NM 87102
Phone: 505-248-3165
Service Categories:
Address:
625 Silver SW, Suite 190
Albuquerque, NM 87102
Phone: 505-248-3165
Email: dvrc@dvrcnm.org
Services Provided:

We are a Trauma Informed Agency whose main focus is to help Victims of Domestic Violence break the cycle of abuse in their lives. Each department, Advocacy, Case Management & Counseling are all here to provide resources, help, guidance and support to help victims get safe, become independent and heal. Our goal is to help a victim break the cycle of violence and heal in order to have healthy relationships in their future. DVRC, Inc. is here to Empower Victims of Domestic Violence and Engage the Community to End the Cycle of Domestic Violence through Education and Prevention. We work with multiple community organizations to help provide resources, legal help, financial resources and help in order to get a victim safe & work with them to rebuild their life after domestic violence.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
2550 Cerrillos Road
Santa Fe, NM 87502
Service Categories:
Address:
2550 Cerrillos Road
Santa Fe, NM 87502
Toll Free Phone: 866-654-3219
Services Provided:

We are committed to protecting the safety of adults who are not able to protect themselves and to promoting the personal choice and self-determination of all we serve.

If you suspect an adult is being abused, neglected, or exploited, call Adult Protective Services Statewide Intake, toll-free at 1-866-654-3219 or 1-505-476-4912.

New Mexico has a “Duty to Report” provision in the Adult Protective Services Act (27-7-30) which states: “Any person, or financial institution, having reasonable cause to believe that an incapacitated adult is being abused, neglected or exploited shall immediately report that information to Adult Protective Services.” Adult Protective Services remains on call for emergent reports of adult abuse, neglect, and exploitation 24 hours a day, 7 days a week.

There are 5 Adult Protective Services Regions serving all 33 counties of New Mexico.

Receives reports of alleged abuse, neglect, self-neglect or
financial exploitation and determines if the client is eligible.
a. Investigates the allegations through interviewing the client, collateral contacts, alleged abuser(s) and through examining, evidence such as medical and bank records.
b. Addresses emergency needs for food, shelter or law enforcement protection,
c. Determines whether abuse is occurring or not. If it is not, the case is closed,
d. If it is, develops a case plan, with the client, to stop the abuse, and to address the client’s health and safety needs through services such as medical or mental health treatment, housing assistance, legal assistance, financial assistance, personal care, and home delivered meals.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
PO Box 90249
Austin, TX 78709
Service Categories:
Address:
PO Box 90249
Austin, TX 78709
Toll Free Phone: 866-331-9474
Services Provided: The National Domestic Violence Hotline and Liz Claiborne Inc. announced Thursday the launch of loveisrespect.org the National Teen Dating Abuse Helpline (NTDAH), a 24-hour national web-based and telephone helpline created to help teens (ages 13-18) experiencing dating abuse during a press conference at the National Press Club in Washington DC. Teen dating abuse affects nearly 1.5 million high school students nationwide in a single year.
Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
PO Box 90249
Austin, TX 78709
Service Categories:
Address:
PO Box 90249
Austin, TX 78709
Toll Free Phone: 800-799-7233
Services Provided: 24 hours a day, seven days a week, 365 days a year, the National Domestic Violence Hotline provides essential tools and support to help survivors of domestic violence so they can live their lives free of abuse.

Contacts to The Hotline can expect highly-trained, expert advocates to offer free, confidential, and compassionate support, crisis intervention information, education, and referral services in over 200 languages.
Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
Address:
NM
Services Provided:

The New Mexico Resource and Referral Guide for Lesbian, Gay, Bisexual, Transgender and Questioning/Queer (LGBTQ) Students was developed in collaboration with New Mexico Youth Education on Sexual Health (YESH) Advisory Council. The guide is intended to be a resource for teachers and school staff to help refer middle and high school students to services in New Mexico. The contents of this guide were developed under a grant from the Health and Human Services Department, Centers for Disease Control (CDC).

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
801 Stephen Moody SE
Albuquerque, NM 87123
Phone: 505-271-3060
Service Categories:
Address:
801 Stephen Moody SE
Albuquerque, NM 87123
Phone: 505-271-3060
Services Provided:

The New Mexico School for the Blind and Visually Impaired (NMSBVI) provides statewide direct services to families of young children who have a diagnosed visual impairment or who are considered to be at risk for receiving a VI diagnosis. Services are a partnership with NMSBVI, New Mexico’s Family, Infant, Toddler Program (FIT), and the Navajo Nation; all children are served by IFSP team decision. Services are delivered in the family home or in another community environment that supports the child and his/her family.

(*Note: Contact Julie Maner who is the Program Coordinator for more information at 505-859-0646 (email: JulieManer@nmsbvi.K12.nm.us) or call 1-800-437-3505 to get a referral for your child).

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
2211 Lomas Blvd NE
Albuquerque, NM 87106
Phone: 505-272-6700
Service Categories:
Address:
2211 Lomas Blvd NE
Albuquerque, NM 87106
Phone: 505-272-6700
Services Provided: Time and comfort become even more valuable throughout your child's final stages of a terminal disease. During this trying time, UNM Children's Hospital is here to help. During your child's last phase of a terminal illness, time and comfort become even more precious. UNM Children's Hospital is your partner during this difficult time. We provide in-home hospice care for your child's discomfort as well as emotional support for your family through our Mariposa Program. For families across New Mexico, our pediatric hospice professionals and caring, trained volunteers provide medical care, respite services, and grief counseling support.
Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
9169 Coors NW
Albuquerque, NM 87120
Phone: 505-346-2306
Service Categories:
Address:
9169 Coors NW
Albuquerque, NM 87120
Phone: 505-346-2306
Services Provided:

AIDC is the Albuquerque Area's only IHS Urban dental clinic. We treat the dental health of:
a. Children (a parent or guardian is required to attend appointments with children under 18),
b. Adults up to age 30
c. Pregnant women
d. Adults for emergency care
&
Our friendly and professional staff is excited to make AIDC your family's dental home. We provide:

a. Preventive and Routine Dental Services for children and adults up to age 30
b. Braces (referral required)
c. Pregnant Woman Dental Exams
d. Same Day Emergency Dental Care (for children and adults of any age)

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
700 Lomas Blvd NE #2-200
Albuquerque, NM 87102
Phone: 505-243-6626
Service Categories:
Address:
700 Lomas Blvd NE #2-200
Albuquerque, NM 87102
Phone: 505-243-6626
Fax: 505-243-7323
Services Provided: The Carrie Tingley Hospital Foundation is a nonprofit organization that provides personalized services to families and children with special needs, such as Patient and Family Assistance (Bathroom remodeling, Wheelchair Ramps, Rent & Utility Assistance, etc.), and Adaptive recreational programs with physical disabilities (which can include Adaptive Kayaking, Horseback Riding, Swim Lessons etc.)
Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
2211 Lomas Blvd. NE
Albuquerque, NM 87106
Phone: 505-272-2111
Service Categories:
Address:
2211 Lomas Blvd. NE
Albuquerque, NM 87106
Phone: 505-272-2111
Services Provided: UNM Health is New Mexico's only Level I Trauma Center, which means we treat patients with the most serious injuries and illnesses from all across the state. We have New Mexico's only Burn and Primary Stroke Centers, as well as the state's only NIH-designated Comprehensive Cancer Center.

UNM Hospitals offers a wide range of medical services such as Behavioral Health, Dentistry, Development & Disability, Family Medicine, Pediatrics, Primary Care, Surgery, and much more.
(*Note: Please see website for a more in -depth list of services provided within their unique department with additional contact information to set-up your appointment: https://unmhealth.org/services/)
Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
2724 Vassar Place NE
Albuquerque, NM 87107
Phone: 505-910-7339
Service Categories:
Address:
2724 Vassar Place NE
Albuquerque, NM 87107
Phone: 505-910-7339
Fax: 833-989-2403
Services Provided:

Pediatric Specialty Care for Children and Youth with Special Health Care Needs, Developmental Disabilities, and Medical Complexity. Provides a nurturing and supportive environment to care for children (birth to 21 years old) with Special Needs, Developmental Disabilities and/or Complex Care in Albuquerque and throughout New Mexico.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
915 Camino de Salud NE
Albuquerque, NM 87106
Phone: 505-272-2321
Service Categories:
Address:
915 Camino de Salud NE
Albuquerque, NM 87106
Phone: 505-272-2321
Email: unmsominfo@salud.unm.edu
Services Provided:

TEASC provides in-home services for New Mexicans age 18 and older with developmental or intellectual disabilities. Patients or their families can request a TEASC consultation. Providers or advocates can also request a referral.

Specialized TEASC providers can visit your home or see the patient in a UNM Family Practice or community clinic. We offer a range of medical and mental health care services, as well as help with support system needs.

TEASC services are provided at no cost to the individual. We are funded by the New Mexico Department of Health/Developmental Disabilities Supports Division.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
1944 W. 21st St.
Clovis, NM 88101
Phone: 575-769-2243
Service Categories:
Address:
1944 W. 21st St.
Clovis, NM 88101
Phone: 575-769-2243
Fax: 575-762-6452
Email: info@chomecare.biz
Services Provided:

Elderly Service. Provides home health care, respite, short and long-term care in Curry, Chaves, Lincoln, and Quay counties.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
552 US Highway 54
Las Vegas, NM 87701
Phone: 575-472-0029
Service Categories:
Address:
552 US Highway 54
Las Vegas, NM 87701
Phone: 575-472-0029
Services Provided: Collins Dental provides services in: Cleanings / Crowns & Bridges / Dental Enamel Shaping / Dental Implants / Dentures / Evaluations & Diagnosis / Exams / Gum Lifts / Laser Treatment / Nutritional Counseling / Reconstruction / Restoration / Root Canals / Teeth Whitening / Wisdom Teeth Extractions / X-rays.

Collins Dental specializes in: Cleanings / Cosmetic Dentistry / Dental Surgery / Sedation Dentistry / General Dentistry / Emergency Care / Medically Compromised Care / Oral Surgery.

Deep Blue Dental is the same dentist at a second location. Address: 552 US-54, Santa Rosa, NM 88435 / Phone: (575) 472-0029.
Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
6800 Montgomery Blvd NE ste J
Albuquerque, NM 87109
Phone: 505-293-7101
Service Categories:
Address:
6800 Montgomery Blvd NE ste J
Albuquerque, NM 87109
Phone: 505-293-7101
Fax: 505-293-7103
Email: Thekidzdentist@yahoo.com
Services Provided: The Kid’s Dentist practice in Albuquerque, NM improves oral health for infants to 20- year-olds. Dr. Hess and his staff welcome all families to a holistic and mercury-free practice, which ensures a safe and non-toxic experience. From routine cleanings to unique services like orthotropics and myofunctional therapy, The Kid’s Dentist is your choice for bettering your child’s health. We are committed to making every patient’s visit as comfortable and enjoyable as possible. To make an appointment or to learn more about us, please fill out the form below, or call us at 505-293-7101!
Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
7711 Zuni Rd SE
Albuquerque, NM 87108
Phone: 505-256-7711
Service Categories:
Address:
7711 Zuni Rd SE
Albuquerque, NM 87108
Phone: 505-256-7711
Services Provided: Dentistry and Orthodontic Services for Albuquerque Kids, Teens and Young Adults up to 25 years old. Se Habla Español.
Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
2116 Hinkle St SE
Albuquerque, NM 87102
Phone: 505-843-7493
Service Categories:
Address:
2116 Hinkle St SE
Albuquerque, NM 87102
Phone: 505-843-7493
Services Provided: NM Community Dental provides dental, braces/orthodontics, x-rays, exams, and l is proud to offer dental services to those low-income families through our Income-Based Discount Program.
Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
1776 Montaño Rd NW
Albuquerque, NM 87107
Phone: 505-615-0951
Service Categories:
Address:
1776 Montaño Rd NW
Albuquerque, NM 87107
Phone: 505-615-0951
Fax: 505-792-6737
Email: info@dciyh.org
Services Provided: Dental Care in Your Home has proudly served New Mexicans since 2010. We are a nonprofit 501c3 organization. We provide mobile dental services.

Dental Examination - Topical Fluoride Treatment / Dental Cleanings / Oral Health Screenings / Portable Dental X-Rays / Patient-Specific Oral Hygiene Instruction / Denture & Partials Cleanings / Dry Mouth Therapy
Palliative Treatment - Silver Nitrate Application / Temporary Fillings / Referral Service / Care Coordination
Corrective Treatment - Restorative Fillings / Simple Tooth Extractions / Full & Partial Dentures / Denture Adjustments, Copy, and Reline
Periodontics Treatment - Deep Cleaning / Periodontics Maintenance
Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
2350 Alamo Avenue SE, Suite 160
Albuquerque, NM 87106
Phone: 505-925-2350
Service Categories:
Address:
2350 Alamo Avenue SE, Suite 160
Albuquerque, NM 87106
Phone: 505-925-2350
Fax: 505-925-2389
Email: continuum@salud.unm.edu
Services Provided: The mission of Continuum of Care is to improve and sustain the quality of health and healthcare for all people with intellectual and/or developmental disabilities in New Mexico.

In furtherance of our mission:

We positively impact the health of people with I/DD through advocacy, training's, clinical services, policy reviews, and policy recommendations.
We contribute to improving the quality of healthcare through clinical consultations and teaching of clinical services.
We support ongoing improvements in the field by evaluating our efforts, incorporating new findings into our training's and services, developing new research, and sharing our findings.
Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
7850 Jefferson St NE Suite 300
Albuquerque, NM 87109
Phone: 505-884-1114
Service Categories:
Address:
7850 Jefferson St NE Suite 300
Albuquerque, NM 87109
Phone: 505-884-1114
Email: info@sageclinic.org
Services Provided: Provides Psychiatric Medication Management, Individual Therapy, Family/Couples Therapy, Children's Therapy & Psychiatry, Group Therapy, Substance Use/Abuse Treatment, and Primary Care services.
Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
Colgate Building
2040 S. Pacheco
Santa Fe, NM 87505
Service Categories:
Address:
Colgate Building
2040 S. Pacheco
Santa Fe, NM 87505
Toll Free Phone: 877-890-4692
Services Provided:

Welcome to Children’s Medical Services. We are the go-to for families who have a child or youth with special health care needs (CYSHCN). Children and Youth with Special Health Care Needs means an individual younger than 21 years old, experiencing a moderate to severe medical condition:

1. With significant potential or actual impact on long term health and ability to function
2. Which requires specialized health care services and/or a variety of services from multiple diverse systems.

Services for CYSHCN birth to 21 years of age:

Care coordination for children and their family.
Access to Multidisciplinary Pediatric Specialty Clinics.
Care for children with a genetic condition.
Follow-up care for children who are deaf or hard of hearing.

For those who meet financial and medical eligibility guidelines:
Payment for medical services, procedures, medications, and supplies.
Payment of premiums, deductibles, and co-pays for the New Mexico Medical Insurance Pool.
Payment for diagnostic services and care coordination.
If you have questions about eligibility or for more information, see our CMS Brochure or contact your local Children's Medical Services office. Please see our CMS Contact Information document for a list of locations.

Visit the Families or Providers section of our website for more specific information, tools, and resources.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
1127 University Blvd NE
Albuquerque, NM 87131
Phone: 505-272-5200
Service Categories:
Address:
1127 University Blvd NE
Albuquerque, NM 87131
Phone: 505-272-5200
Services Provided:

UNM Health’s Carrie Tingley Hospital (CTH) has been providing compassionate, coordinated health care to children and adolescents with complex musculoskeletal and orthopedic conditions, rehabilitation needs, developmental issues and long-term physical disabilities for more than 70 years.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
611 Osuna Road NE
Albuquerque, NM 87113
Phone: 505-888-6500
Service Categories:
Address:
611 Osuna Road NE
Albuquerque, NM 87113
Phone: 505-888-6500
Services Provided:

HME Specialists provide services for durable medical equipment, rehabilitation and mobility, home infusion therapies, nutrition products and services, bariatric products and services, respiratory products and services, wound care services, and medical supplies.

Locations include Albuquerque, Albuquerque West Side, Albuquerque Masthead, Santa Fe, Farmington, Las Cruces, Clovis, Las Vegas, Gallup, Hobbs, Silver City, Roswell, and El Paso.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
4431 Anaheim Ave NE Suite A
Albuquerque, NM 87113
Phone: 505-715-4284
Service Categories:
Address:
4431 Anaheim Ave NE Suite A
Albuquerque, NM 87113
Phone: 505-715-4284
Fax: 505-355-6991
Email: albuquerque@nsm-seating.com
Services Provided:

NSM supports individuals mobility, accessibility, and servicing.

Our expert team will collaborate with you to determine the mobility solutions to best support physical and functional skills, daily activities, and accessibility in and around your home and life.

Our certified professionals work with industry-leading suppliers to choose the best products for your needs. From evaluation to installation and routine maintenance, we help you access life.

Our experienced technicians stand ready to assist you and guide you through the process of having your mobility device serviced or repaired.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
801 Stephen Moody SE
Albuquerque, NM 87123
Phone: 505-271-3060
Service Categories:
Address:
801 Stephen Moody SE
Albuquerque, NM 87123
Phone: 505-271-3060
Services Provided:

NMSBVI Albuquerque offers statewide outreach and preschool/kindergarten education services.

Preschool/kindergarten is part of NMSBVI’s continuum of services offered to children throughout each stage of growth and development. The Preschool and Kindergarten Program serves children who are blind or visually impaired between the ages of 3 and 6 from Albuquerque and the surrounding areas. Students are required to have a diagnosed vision impairment that adversely impacts their capacity to learn in a more traditional classroom. All students are placed in the program by IEP committee decision held by the student’s resident public school system.

The academic program for Preschool and Kindergarten consists of literacy (print and Braille), math, concept development, socialization and all aspects of the expanded core curriculum for blindness. Students are encouraged to explore and to become familiar with their immediate environment; then expand outward to travel successfully into new and unfamiliar areas. Guided exploration and self-discovery are used to support learning at every level. All children are placed in the preschool programs by IEP team decision because they require daily support from a teacher of the visually impaired

The Preschool and Kindergarten Program offers additional services to students who qualify. These services include:
Classroom instruction from Teachers of the Visually Impaired
Orientation and Mobility instruction
Speech-Language Therapy
Physical Therapy
Occupation Therapy
Nursing
Social Work
Audiology
Transportation

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
7905 Marble Ave. NE
Albuquerque, NM 87110
Phone: 505-222-4600
Service Categories:
Address:
7905 Marble Ave. NE
Albuquerque, NM 87110
Phone: 505-222-4600
Fax: 505-232-5720
Services Provided: Many persons with Intellectual/Developmental Disabilities (IDD) receive dental care in their home communities.

Some individuals have special dental needs and are seen at the DDSD Specialty Clinic which is located in Albuquerque, New Mexico.

The clinic is staffed by Dr. Ray Lyons and Dr. Alicia Grady, experts at providing quality dental care for persons with disabilities. They and their team of hygienists and dental assistants have training, experience and skills to meet the unique dental needs of their patients.
Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
2300 Menaul Blvd NE
Albuquerque, NM 87107
Phone: 505-272-2910
Service Categories:
Address:
2300 Menaul Blvd NE
Albuquerque, NM 87107
Phone: 505-272-2910
Fax: 505-272-8100
Email: cbarden@salud.unm.edu
Services Provided:

We provide registered nurse case management/service coordination services statewide for medically fragile children and their families since 1985.
In New Mexico, children who have a high level of dependence on medical technology such as ventilators, tracheostomies, oxygen, feeding tubes, dialysis, intravenous medication and require total care for all their daily needs are identified as medically fragile.

Medically Fragile Case Management Program (MFCMP), the Medically Fragile Waiver, and community services support families in their decision to care for their medically fragile child in their home.

Source: University of New Mexico, Center for Development and Disability
Last Updated: 8/13/2021
141 Northwest Point Blvd
Elk Grove Village, IL 60007-1098
Phone: 847-434-4000
Service Categories:
Address:
141 Northwest Point Blvd
Elk Grove Village, IL 60007-1098
Phone: 847-434-4000
Fax: 847-434-8000
Services Provided: Professional association dedicated to the health, safety, and well-being of all infants, children, adolescents, and young adults.
Source: MHP-Nationwide
Last Updated: 1/10/2020
31 Center Dr., MSC 2320
Bethesda, MD 20892
Phone: 800-241-1044
Service Categories:
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
31 Center Dr., MSC 2320
Bethesda, MD 20892
Phone: 800-241-1044
TDD: 800-241-1055
Eligibility: communication disorders
Services Provided:

Information specialists provide callers with fact sheets, resources and referrals to other organizations and agencies. Topics include hearing, balance, smell and taste, voice, speech, and language disorders.

Source: MHP-Nationwide
Last Updated: 9/18/2020
42-40 Bell Boulevard, Suite 205
Bayside, NY 11361-2820
Phone: 718-224-2999
Service Categories:
Address:
42-40 Bell Boulevard, Suite 205
Bayside, NY 11361-2820
Phone: 718-224-2999
Toll Free Phone: 888-486-8738
Fax: 718-279-9596
Email: support@tourette.org
Services Provided:

A national organization serving children, individuals and families affected by Tourette Syndrome (TS) and other tic disorders. Comprehensive online information includes six online CME/CNE programs, programs on Recognition, Diagnosis & Treatment, and training for Allied Professionals and Educators. The website also contains resources for patients and families.

Find a Provider: Directory of experts in Tourette Syndrome that can be filtered by age group, clinical expertise (specialty), and location.

Tourette Syndrome Centers of Excellence: List of Centers of Excellence in the care of Tourette Association, recognized by the Tourette Association of America as promoting the highest level of care, research, education & training, and advocacy & awareness for these conditions.

Source: MHP-Nationwide
Last Updated: 1/4/2021
55 East Jackson Blvd., Suite 490
Chicago, IL 60604
Phone: 800-826-3632
Service Categories:
Address:
55 East Jackson Blvd., Suite 490
Chicago, IL 60604
Phone: 800-826-3632
Toll Free Phone: 800-826-3632
Fax: 312-642-7243
Eligibility: Contact for specific information.
Services Provided: Educates patients, professionals, and the public concerning the nature of depressive, bipolar disorder (also known as manic depression) or mood disorder. Maintains over 1000 support groups around the country.
Provider Profiles: National
Source: MHP-Nationwide
Last Updated: 1/17/2020
555 E. Wells Street, Suite 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Service Categories:
Address:
555 E. Wells Street, Suite 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Fax: 414-276-2146
Email: info@aacpdm.org
Services Provided:

A multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.

AACPDM Medical Professional Directory offers patients and families the option to search for members by locations, specialty and/or patient type.

The website also offers continuing education for professionals and educational resources for individuals and families.

Source: MHP-Nationwide
Last Updated: 6/8/2020
1963 McCraren Rd.
Highland Park, IL 60035
Service Categories:
Address:
1963 McCraren Rd.
Highland Park, IL 60035
Toll Free Phone: 877-720-2192
Email: paf@pafoundation.com
Services Provided:

Mission: Propionic Acidemia Foundation is dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.

Organization offers educational resources for families and patients, a patient registry, conferences and trainings, online support groups, and more.

Source: MHP-Nationwide
Last Updated: 6/8/2020
4550 Montgomery Avenue, Suite 1100 N
Bethesda, MD 20814
Phone: 301-951-4422
Service Categories:
Address:
4550 Montgomery Avenue, Suite 1100 N
Bethesda, MD 20814
Phone: 301-951-4422
Toll Free Phone: 800-344-4823
Fax: 301-951-6378
Services Provided: The mission of the Cystic Fibrosis (CF) Foundation is to cure cystic fibrosis and provie all people with CF the opportunity to lead long, fulfilling lives.

The CF Foundation funds research and drug development and provides CF-related resources for families and medical providers.

[https://www.cff.org/Assistance-Services/About-Compass/What-Is-Compass/ Compass] is a personalized one-on-one service to help with the insurance, financial, legal, and other issues faced by people living with CF, their families, and their care teams.

The [https://www.cff.org/ccd/ CF Care Center] finder is a web-based location finder for cystic fibrosis accredited care centers nationwide. The Cystic Fibrosis Foundation provides funding for and accredits more than 110 cystic fibrosis care centers and 55 affiliate programs nationwide, including 96 programs for treating adults with CF.
Source: MHP-Nationwide
Last Updated: 2/7/2020
5420 S. Quebec Street, Suite 135
Greenwood Village, CO 80111
Phone: 303-794-1182
Service Categories:
Address:
5420 S. Quebec Street, Suite 135
Greenwood Village, CO 80111
Phone: 303-794-1182
Fax: 303-322-5550
Services Provided:

The SPD Foundation offers online courses, resources, advocacy, and support groups for professionals, parents, and others interested in helping individuals with Sensory Processing Disorder.

Source: MHP-Nationwide
Last Updated: 6/8/2020
Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
Phone: 785-864-7600
Service Categories:
Organization Name: University of Kansas
(Show others in Organization)
Address:
Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
Phone: 785-864-7600
Fax: 785-864-7605
Services Provided: The Beach Center on Disability is a multidisciplinary research and training center committed to making a significant and sustainable positive difference in the quality of life of individuals and families affected by disability and the professionals who support them. Internationally-recognized leaders in research on and interventions to promote the self-determination of children, youth, and adults with (and without) disabilities.
Provider Profiles: Based at the University of Kansas.
Source: MHP-Nationwide
Last Updated: 1/6/2020
108 NE 2nd St
PO Box 510
Concordia, MO 64020
Phone: 660-463-1355
Service Categories:
Address:
108 NE 2nd St
PO Box 510
Concordia, MO 64020
Phone: 660-463-1355
Toll Free Phone: 866-303-2279
Email: info@fabry.org
Services Provided: Information about Fabry disease, support group, discussion page, information about research, links to resources, and more.
Source: MHP-Nationwide
Last Updated: 1/31/2020
7240 Parkway Drive, Suite 180
Hanover, MD 21076
Phone: 410-528-1555
Service Categories:
Address:
7240 Parkway Drive, Suite 180
Hanover, MD 21076
Phone: 410-528-1555
Toll Free Phone: 800-421-8453
Fax: 410-528-1495
Email: admin@sicklecelldisease.org
Services Provided: National nonprofit with chapters in multiple states. Supports research, public health education, professional health education, patient services, community services, and global organizations.
Provider Profiles: Mission: To advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.
Source: MHP-Nationwide
Last Updated: 1/6/2020
Campus Box 8180
Chapel Hill, NC 27599-8180
Phone: 919-966-2622
Service Categories:
Organization Name: University of North Carolina at Chapel Hill
(Show others in Organization)
Address:
Campus Box 8180
Chapel Hill, NC 27599-8180
Phone: 919-966-2622
Services Provided:

Offers support to children and families through interdisciplinary research, technical assistance, professional development, and implementation science. FPG is one of the nation's oldest and largest multidisciplinary centers devoted to the study of young children and their families.

Source: MHP-Nationwide
Last Updated: 9/1/2021
6728 Old McClean Village Dr
Mclean, VA 22101
Phone: 703-556-9222
Service Categories:
Organization Name: Pediatric Endocrine Society (PES)
(Show others in Organization)
Address:
6728 Old McClean Village Dr
Mclean, VA 22101
Phone: 703-556-9222
Fax: 703-556-8729
Email: info@pedsendo.org
Services Provided:

Offers a variety of clinical and patient resources as well as educational events for clinicians.

Find a Pediatric Endocrinologist: Search the Pediatric Endocrine Society membership list.

Upcoming Camps: Directory of specialty camps for kids, including Diabetes Camps, Turner Syndrome Camps, and Transgender Youth and Teen Camps. Not run or endorsed by the Pediatric Endocrine Society.

Source: MHP-Nationwide
Last Updated: 9/14/2020
8301 Professional Place West, Ste 230
Hyattsville, MD 20785
Phone: 301-459-3700
Service Categories:
Address:
8301 Professional Place West, Ste 230
Hyattsville, MD 20785
Phone: 301-459-3700
Toll Free Phone: 800-332-1000
Email: ContactUs@efa.org
Wheelchair Access: Full Wheelchair Access
Eligibility:

Individuals with epilepsy, their families and friends.

Services Provided:

Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.  Offers support groups for people with epilepsy.

Spanish-language line: 866-748-8008

Source: Nationwide Suggest Providers Queue
Last Updated: 6/17/2021
6700 Washington Avenue South
Eden Prairie, MN 55344
Phone: 800-328-8602
Service Categories:
Address:
6700 Washington Avenue South
Eden Prairie, MN 55344
Phone: 800-328-8602
Fax: 952-828-6900
Email: info@starkeyfoundation.org
Eligibility:

Based on income and assets

Services Provided:

Starkey Hearing Foundation uses the gift of hearing to reflect caring and sharing and improve the lives of individuals, families and communities.

COVID-19 UPDATE: Following all CDC and State guidelines.

  • Hearing Aids
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
110 West Road Ste 300
Towson, MD 21204
Phone: 800-296-4433
Service Categories:
Address:
110 West Road Ste 300
Towson, MD 21204
Phone: 800-296-4433
Fax: 410-321-9165
Email: frontdesk@primaryimmune.org
Eligibility:

Individuals with primary immunodeficiency diseases and their families

Services Provided:

A national patient organization dedicated to improving the diagnosis, treatment, and quality of life of persons with primary immunodeficiency diseases through advocacy, education, and research.

COVID-19 HOURS: Following all CDC and State guidelines.

  • Disease/Disability Information
  • Health/Disability Related Support Groups
Source: MHP-Nationwide
Last Updated: 6/3/2021
24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-359-7400
Service Categories:
Address:
24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-359-7400
Fax: 801-359-7404
Email: support@batemanhornecenter.org
Wheelchair Access: Complete
Eligibility: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM), and other related illnesses. Must have a primary care provider and complete an application.
Services Provided: Leading the way in the medical advancement and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia. Formerly the Fatigue Consultation Clinic (FCC) and the Organization for Fatigue & Fibromyalgia Education & Research (OFFER), BHC been committed to the education of medical providers for more than 25 years.

Engages in research and provides treatment. Educational Resources available for providers and patients.

Contact Information:
Clinic Phone: (801) 359-7400
Research Phone: (801) 532-8311
Research Fax: (801) 364-3528
Clinic Fax: (801) 359-7404
Source: Nationwide Suggest Providers Queue
Last Updated: 4/17/2020
1600 Clifton Road
Atlanta, GA 30329-4027
Phone: 800-232-4636
Service Categories:
Address:
1600 Clifton Road
Atlanta, GA 30329-4027
Phone: 800-232-4636
TDD: 888-232-6348
Eligibility:

No restrictions

Services Provided:

Protects America from health, safety, and security threats, both foreign and within the U.S. Conducts critical science and provides vital information that protects the nation against dangerous health threats, and responds to emergencies when they arise. Visit website for the most up to the minute information on COVID-19.

COVID-19 Update: The VaccineFinder website is a free, online service where users can search for locations that offer vaccinations. The Website was developed by CDC and partners such as clinics, pharmacies, and health departments to provide accurate and up-to-date information about vaccination services.

  • Communicable Disease Control
  • Vaccine Information
Source: MHP-Nationwide
Last Updated: 8/18/2021
9609 Medical Center Drive
Rockville, MD 20850
Phone: 800-422-6237
Service Categories:
Address:
9609 Medical Center Drive
Rockville, MD 20850
Phone: 800-422-6237
Email: nciinfo@nuh.gov
Wheelchair Access: Complete
Languages Spoken: Spanish
Eligibility:

None

Services Provided:

A free public service providing easy to understand, accurate, up-to-date, and reliable information services to answer cancer-related questions to patients, their friends and family, healthcare providers, or researchers. Includes answers to clinical trial questions, how to find treatment, risk factors, symptoms, diagnostics, and treatment, etc. Leads, conducts, and supports cancer research across the nation to help all people live longer, healthier lives.

COVID-19 UPDATE: Following all CDC and State guidelines.

  • Internet Information Resources
  • Disease/Disability Information
  • Specialized Information and Referral
  • Medical Information Services
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
3104 E Boundary Ct
Midlothian, VA 23112
Phone: 800-366-7741
Service Categories:
Address:
3104 E Boundary Ct
Midlothian, VA 23112
Phone: 800-366-7741
Toll Free Phone: 800-366-7741
Fax: 804-744-9388
Email: psiops@uneedpsi.org
Languages Spoken: Spanish, other language interpreters available
Eligibility:

Financial assistance for insured and uninsured patients with chronic illnesses.

Services Provided:

Provides online disease and treatment information as well as financial assistance for patients with chronic illnesses who are struggling to keep up with expensive premiums and co-payments. Financial support and guidance available for qualified patients with specific, rare chronic diseases.

COVID-19 UPDATE: Following all CDC and State guidelines.

  • Specialized Information and Referral
  • Medical Care Expense Assistance
Provider Profiles:

Online resources

Source: MHP-Nationwide
Last Updated: 6/3/2021
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
Phone: 201-250-8440
Service Categories:
Address:
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
Phone: 201-250-8440
Toll Free Phone: 800-714-5437
Fax: 201-250-8435
Email: info@parentprojectmd.org
Services Provided: Information about Duchenne Muscular Dystrophy for families, including responding to a new diagnosis, finding care, and genetic testing. PPMD’s Decode Duchenne genetic testing program provides free genetic testing and counseling to people in the Duchenne or Becker muscular dystrophy community who otherwise could not afford genetic testing.

Runs Certified Duchenne Care Center Program, which supports standardized comprehensive care for people with Duchenne. Also promotes research and organizes advocacy initiatives.
Source: MHP-Nationwide
Last Updated: 5/9/2019
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
Service Categories:
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
TDD: 866-569-1162
Email: healthinfo@niddk.nih.gov
Eligibility: Contact for specific information.
Services Provided:

NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.

Source: Nationwide Suggest Providers Queue
Last Updated: 9/18/2020
2121 K Street NW Ste 200
Washington, DC 20037
Phone: 202-349-1155
Service Categories:
Address:
2121 K Street NW Ste 200
Washington, DC 20037
Phone: 202-349-1155
Toll Free Phone: 800-657-6398
Fax: 202-349-1156
Email: info@lupus.org
Languages Spoken: Spanish
Services Provided:

Improves the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.

  • Health/Disability Related Support Groups
  • Disease/Disability Information
  • Voluntary Health Organizations

Chapter Finder: Find support and connection in your community.

Source: MHP-Nationwide
Last Updated: 6/3/2021
7272 Greenville Avenue
Dallas, TX 75231
Phone: 214-373-6300
Service Categories:
Address:
7272 Greenville Avenue
Dallas, TX 75231
Phone: 214-373-6300
Toll Free Phone: 888-242-2453
Services Provided: Information for individuals, families, and professionals regarding heart-related concerns. Includes general health information, information regarding specific conditions, and information about CPR and First Aid training.

The [https://www.heart.org/en/ American Stroke Association] is a division of the American Heart Association focused on stroke prevention and treatment.
Source: Nationwide Suggest Providers Queue
Last Updated: 2/7/2020
806 West Adams Boulevard
Los Angeles, CA 90007
Phone: 213-748-5481
Service Categories:
Address:
806 West Adams Boulevard
Los Angeles, CA 90007
Phone: 213-748-5481
Fax: 213-749-1651
Eligibility: Infants and preschool children with hearing loss.
Services Provided: A leading diagnostic and education center for young children with hearing loss. It provides free, parent-centered services. The Clinic offers worldwide family services, local family services, professional education, preschool, and hearing testing. The Clinic has over 60 years of expertise in the spoken language option, called "oralism," serving 25,000 families each year.

Hearing Screening
Parent Support Groups
Preschools
Online courses
Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
6520 North Andrews Avenue
Fort Lauderdale, FL 33309-2132
Service Categories:
Address:
6520 North Andrews Avenue
Fort Lauderdale, FL 33309-2132
Toll Free Phone: 800-225-6495
Wheelchair Access: Ramps
Services Provided: Nonprofit organization, our primary mission is to ensure the best quality of life for those coping with MS by providing comprehensive support and educational programs.

Disease/Disability Information
Information and Referral
Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 1/6/2020
4340 East-West Highway Suite 350
Bethesda, MD 20814
Phone: 301-657-0881
Service Categories:
Address:
4340 East-West Highway Suite 350
Bethesda, MD 20814
Phone: 301-657-0881
Toll Free Phone: 800-328-8476
Email: info@autism-society.org
Services Provided: We provide advocacy, education, information and referral, support, and community at national, state and local levels through our strong nationwide network of Affiliates.

Disability Awareness Programs
Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
375 Kings Highway North
Cherry Hill, NJ 08034
Service Categories:
Address:
375 Kings Highway North
Cherry Hill, NJ 08034
Toll Free Phone: 800-532-7667
Fax: 856-661-9797
Email: MSquestions@mymsaa.org
Eligibility: Individuals with MS
Services Provided: Ongoing support and direct services.

Individual Advocacy
Information and Referral
Equipment Distribution Program by application
Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
PO Box 659
Paoli, PA 19301
Phone: 888-999-9428
Service Categories:
Address:
PO Box 659
Paoli, PA 19301
Phone: 888-999-9428
Email: info@genetic.org
Services Provided: Information about chromosome variation for for parents and parents-to-be, individuals, and medical professionals.

Services include:
-Helpline: 888-999-9428 or helpline@genetic.org
-Support meetings, conferences, and webinars
-Information about chromosome variations
-[https://genetic.org/professional-directory-info/ Professional Directory]
-[https://genetic.org/im-adult-looking-answers/clinics/ AXYS Clinic and Research Consortium] clinic list
-[https://genetic.org/im-adult-looking-answers/support-groups/ Support Groups]
Source: Nationwide Suggest Providers Queue
Last Updated: 2/7/2020
1805 Moriah Woods Blvd, Suite 3
Memphis, TN 38117
Phone: 901-761-0343
Service Categories:
Address:
1805 Moriah Woods Blvd, Suite 3
Memphis, TN 38117
Phone: 901-761-0343
Toll Free Phone: 800-992-9392
Fax: 901-761-0484
Email: jwarner@tn.stutteringhelp.org
Wheelchair Access: Not Applicable
Services Provided:

The Stuttering Foundation provides resources, services and support to those who stutter and their families as well as support for research into the causes of stuttering.

Free packets of informative brochures, referral lists for fluency specialists and a catalog of resources are available.

The Foundation publishes 30 books, 41 DVD videos and 26 brochures on stuttering. Over 800,000 publications are distributed each year to those who stutter, their families, speech language pathologists, pediatricians, family physicians, clinics, day care centers, libraries and others concerned with the problem of stuttering.

Source: Nationwide Suggest Providers Queue
Last Updated: 9/30/2020
JDRF View on Map
200 Vesey Street, 28th Floor
New York, NY 10281
Phone: 800-533-2873
Service Categories:
Address:
200 Vesey Street, 28th Floor
New York, NY 10281
Phone: 800-533-2873
Fax: 212-785-9595
Email: info@jdrf.org
Services Provided: JDRF's (formerly Juvenile Diabetes Research Foundation) primary objective is to fund research into Type 1 diabetes.
Also provides:
•Informational Guides
•Virtual community
•Local chapters
•Fundraising and social events
Source: Nationwide Suggest Providers Queue
Last Updated: 1/3/2020
31 Center Dr, MSC 2510
Bethesda, MD 20892-2510
Phone: 301-496-5248
Service Categories:
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
31 Center Dr, MSC 2510
Bethesda, MD 20892-2510
Phone: 301-496-5248
Email: 2020@nei.nih.gov
Services Provided:

National Eye Institute is the principal agency for conducting and supporting vision research aimed at improving the prevention, diagnosis, treatment and rehabilitation of diseases that affect the eye and vision

Source: Nationwide Suggest Providers Queue
Last Updated: 9/18/2020
Delaware, OH 43065
Phone: 740-972-5619
Service Categories:
Address:
Delaware, OH 43065
Phone: 740-972-5619
Eligibility:

Any persons with interest in MSUD

Services Provided:

The MSUD Family Support Group membership includes families and professionals worldwide.

Services Include:

  • Providing opportunities for support and personal contact for those with MSUD and their families.
  • Distributing information and raising public awareness of MS
  • Strengthening the liaison between families and professionals.
  • Encouraging newborn screening programs and research for MSUD.
Source: Nationwide Suggest Providers Queue
Last Updated: 9/1/2021
PO Box 7762
Wilmington, DE 19803
Service Categories:
Address:
PO Box 7762
Wilmington, DE 19803
Services Provided:

The Childhood RND Educational Foundation is a 501(c)(3) non-profit organization dedicated to educating health professionals and families who deal with amplified musculoskeletal pain syndromes (AMPS) such as fibromyalgia, complex regional pain syndrome (CRPS), RSD, RND, neuropathic pain and myofascial pain. Services include:
-Educational materials about a variety of pain issues
-[https://stopchildhoodpain.org/faqs/what-hospitals-offer-this-treatment-program/ Directory of pediatric AMPS treatment programs.]

Source: MHP-Nationwide
Last Updated: 10/28/2020
108 West 39th Street, Suite 805
New York, NY 10018
Phone: 6463660830
Service Categories:
Address:
108 West 39th Street, Suite 805
New York, NY 10018
Phone: 6463660830
Email: customerservices@additudemag.com
Services Provided: Online resources and information related to Attention Deficit Hyperactive Disorder (ADD and ADHD) for children, adults, parents, schools, and more.
Source: Nationwide Suggest Providers Queue
Last Updated: 4/14/2020
Understood View on Map
145 Hudson Street, Suite 5B
New York, NY 10013–2150
Phone: (516) 654-7584
Service Categories:
Address:
145 Hudson Street, Suite 5B
New York, NY 10013–2150
Phone: (516) 654-7584
Email: media@understood.org
Eligibility: Individuals with learning and thinking differences and their families
Services Provided:

Resources for individuals with thinking and learning differences, including ADHD, dyslexia, and dyscalculia. Information for parents, educators, and young adults. Also offers a workplace program for individuals in the workplace.

Offerings include articles and online resources, information about how to get assistance, and an online community.

Source: Nationwide Suggest Providers Queue
Last Updated: 6/26/2020
39252 Winchester Road, #107-135
Murrieta, CA 92563
Phone: 918-490-3055
Service Categories:
Address:
39252 Winchester Road, #107-135
Murrieta, CA 92563
Phone: 918-490-3055
Services Provided:

Connecting Families UCD Foundation provides resources, information, and support groups for families and individuals with Urea cycle disorders (UCDs).

UCD Family Camps: Connecting Families UCD Foundation hosts annual camps for families affected by a Urea Cycle Disorder. UCD Family Camps are held in different locations across the US so that all families around the country may have an opportunity to attend. Camps are 100% free of charge to UCD families and siblings (any age). All costs of foods (low-pro), lodging, and shuttling to and from airport to camp site is provided as well.

Source: MHP-Nationwide
Last Updated: 8/19/2020
PO Box 54
Okemos, MI 48805-0054
Phone: 517-381-1940
Service Categories:
Address:
PO Box 54
Okemos, MI 48805-0054
Phone: 517-381-1940
Fax: 866-290-5206
Services Provided:

Support group for Fatty Oxidation Disorders. Raises funds for Educational and Networking Services and Programs. Medical information, including information about newborn screening, and support resources.

Source: MHP-Nationwide
Last Updated: 8/19/2020
15 South Mallory Avenue
Batavia, IL 60510
Phone: 630-360-2087
Service Categories:
Address:
15 South Mallory Avenue
Batavia, IL 60510
Phone: 630-360-2087
Email: info@hcunetworkamerica.org
Services Provided:

Resources, information, research information, and support for HCU.

Source: MHP-Nationwide
Last Updated: 8/19/2020
Service Categories:
Address:
Services Provided:

Information about PKU, research, advocacy, and resources.

Find a Clinic by state, zip code, or map.

Source: MHP-Nationwide
Last Updated: 8/19/2020
75 South Grand Avenue
Pasadena, CA 91105
Phone: 626-578-0833
Service Categories:
Address:
75 South Grand Avenue
Pasadena, CA 91105
Phone: 626-578-0833
Toll Free Phone: 800-386-8233
Fax: 626-578-0823
Email: info@nucdf.org
Services Provided:

The goals of the National Urea Cycle Disorders Foundation (NUCDF) are:

  • To provide guidance and information to families and others affected by urea cycle disorders.    
  • To create a caring community, networking families together for support.    
  • To educate healthcare professionals on the identification, diagnosis and treatment of UCD.      
  • To stimulate and support research which leads to improved quality of life for today and a CURE for tomorrow.    
  • To increase public awareness on the existence of UCDs so that no child or adult ever goes undiagnosed.    
  • To educate legislators on the needs of children, adults and families affected by these rare disorders.
Source: MHP-Nationwide
Last Updated: 8/19/2020
P.O. Box 4780
Rockville, MD 20849-6303
Phone: 800-448-0440
Service Categories:
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
P.O. Box 4780
Rockville, MD 20849-6303
Phone: 800-448-0440
TDD: 888-480-3739
Fax: 301-315-2818
Eligibility: HIV/AIDS patients, their families and friends, health care providers and researchers.
Services Provided:

AIDS info is a U.S. Department of Health and Human Services (DHHS) project providing information on HIV/AIDS clinical trials and treatment. It is the result of merging two previous DHHS projects: The AIDS Clinical Trials Information Service (ACTIS) and the HIV/AIDS Treatment Information Service (ATIS).

AIDS info is a central resource for current information on federally and privately funded clinical trials for AIDS patients and others infected with HIV. AIDS clinical trials evaluate experimental drugs and other therapies for adults and children at all stages of HIV infection -- from patients who are HIV positive with no symptoms to those with various symptoms of AIDS.

Source: Nationwide Suggest Providers Queue
Last Updated: 9/4/2020
P.O. Box 424049
Washington, DC 20042-4049
Phone: 800-634-8978
Service Categories:
Address:
P.O. Box 424049
Washington, DC 20042-4049
Phone: 800-634-8978
Toll Free Phone: 800-634-8978
Eligibility: People with tinnitus, their families and health care professionals, and the public.
Services Provided:

The American Tinnitus Association (ATA) is the national champion of tinnitus awareness, prevention, and treatment. Under its guiding principles - Education, Advocacy, Research, and Support - the ATA offers prevention programs in schools, urges governmental and private organizations to support hearing conservation, funds the nations brightest researchers, and facilitates self-help groups around the country.

Source: Nationwide Suggest Providers Queue
Last Updated: 9/4/2020
Organization Name: Center for Disease Control and Prevention
(Show others in Organization)
Address:
1600 Clifton Road
Atlanta, GA 30329
Toll Free Phone: 800-232-4636
Services Provided:

Provides education for families in identifying development milestones in children from birth to 5 years old. Provides resources and supports (WIC, Early Childhood Intervention, Home-visiting, and Education Materials) for families who may have concerns and how to reach out to a local healthcare provider.

Source: Nationwide Suggest Providers Queue
Last Updated: 8/18/2021