Disease/Disability Information

UNM Truman Health Services' goal is to help clients live a healthy life with HIV. With medications and a healthy lifestyle, clients can reach an undetectable HIV viral load and improve their immune systems. Truman Health Services provides free testing, primary and specialty care for people with HIV, medication education and counseling, medication management, diagnostic assessments, neuropsychological assessments, counseling and psychotherapy, psychiatric consultations, substance use treatment and referral services, medical and non-medical case management, and social support services. They also offer chiropractic, acupuncture, medical massage and clinical nutrition.

AIDC is the Albuquerque Area's only IHS Urban dental clinic. AIDC treats the dental health of children, adults up to age 30, pregnant women, and adults in emergency care. The friendly and professional staff is excited to make AIDC the family's dental home. Services provided are preventive and routine dental services and exams, pregnant woman dental exams, braces (referral required), and same day emergency dental care.

The BIAC supports evidence based research and education and advises public and private entities to enhance the statewide system of comprehensive, community based resources, services and supports that maximize the personal choices and functional independence of persons with brain injuries. The BIAC also promotes prevention and increased public awareness to decrease the incidence of brain injuries. Members of the council include individuals with brain injuries, family members, healthcare professionals, and representatives from agencies that provide help for persons living with brain injuries.

Medical Home Portal is a tool and project that was implemented in 2001, and is utilized in Idaho, Montana, Nevada, Rhode Island, Utah, and in New Mexico that is a one-stop shop for children and youth with special health care requirements (CYSHCN) for Families, Medical Home Teams and Physicians, Caregivers and Other Professionals. They provide them with better knowledge of local resources for their care, practice-based case managers to link families and resources, and best practice guidelines for common chronic conditions in children.

We exist to provide support and assistance to all people with Down syndrome and their families. We do this by providing family services, community awareness, and educational programs. Our vision is for individuals with Down syndrome to be fully included as valued members of society, so they can each reach their personal dreams. The Down Syndrome Foundation of Southeastern New Mexico is committed to provide support and education to all individuals with Down syndrome and their families. We service nine counties: Chaves, Eddy, Lea, Roosevelt, De Baca, Curry, Lincoln, Otero, & Dona Ana, however we are always happy to help individuals outside of our service area. For more information, please contact us.

The Continuum of Care project grew out of the idea that health care services should be available and delivered in a comprehensive and coordinated manner from infancy to adulthood, assuring people with disabilities access to the full array of health services from a multidisciplinary approach. COC provides consultations to New Mexicans with developmental disabilities; trains medical students, doctors, nurses, social workers and others; and assists persons with developmental disabilities in a variety of other ways.

Children’s Medical Services work with families who have a child or youth with special health care needs (CYSHCN). Services for CYSHCN birth to 21 years of age include care coordination for children and their family, access to Multidisciplinary Pediatric Specialty Clinics, care for children with a genetic condition, and follow-up care for children who are deaf or hard of hearing. Those who meet financial and medical eligibility guidelines may receive payment for medical services, procedures, medications, supplies, premiums, deductibles, co-pays, diagnostic services, and care coordination.

The New Mexico Commission for Deaf and Hard of Hearing (NMCDHH) provides leadership, education, advocacy and programs to reduce barriers to the social, economic, educational, cultural and intellectual well-being of Deaf and Hard of Hearing New Mexicans and their families, friends and colleagues. The NMCDHH Department of Community Advocacy provides advocacy services on an individual level and a systems level for individuals who face communication barriers in employment, government, legal, and business settings. The Telecommunications Equipment Distribution Program (TEDP) lends telecommunications devices at no cost to qualifying New Mexico residents who need assistance in communicating on the phone. The NMCDHH also provides interpreter information.

New Mexico Autism Society is an affiliate of the Autism Society of America and follow their mission statement: Improving the lives of all affected by autism. They strive to create a community of acceptance, support and connection for those affected by autism in New Mexico. They do the following: meet monthly; support autism groups in NM; provide and promote autism-related educational programs and conferences for the community; advocate and educate regarding state and federal legislation to assist families and individuals with autism; plan recreational activities to promote emotional support for families; work on state and local committees with other agencies and organizations to further goals and to improve resources. They work with the Autism Programs at the Center for Development and Disability at the University of New Mexico, in addition to working with other autism providers throughout the state.

The New Mexico Brain Injury Resource Center (NMBIRC) is an individuals one-stop shop for information and referrals on a wide variety of topics related to brain injury including services, supports and education. The New Mexico Brain Injury Resource Center at ARCA is funded through the New Mexico Brain Injury Service Fund of the New Mexico Human Services Department. The managing partner of the New Mexico Brain Injury Resource Center (NMBIRC), ARCA, was incorporated in Albuquerque in 1957. This nationally recognized nonprofit provides lifelong supports for individuals with disabilities to live, work and enjoy rich recreational experiences in valued community roles.

Information specialists provide callers with fact sheets, resources and referrals to other organizations and agencies. Topics include hearing, balance, smell and taste, voice, speech, and language disorders.

Serves children, individuals and families affected by Tourette Syndrome (TS) and other tic disorders. Provides comprehensive online information including six online CME/CNE programs, programs on Recognition, Diagnosis & Treatment, and training for Allied Professionals and Educators. The website also contains resources for patients and families.

Find a Provider: Directory of experts in Tourette Syndrome that can be filtered by age group, clinical expertise (specialty), and location.

Tourette Syndrome Centers of Excellence: List of Centers of Excellence in the care of Tourette Association, recognized by the Tourette Association of America as promoting the highest level of care, research, education & training, and advocacy & awareness for these conditions.

A multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.

AACPDM Medical Professional Directory offers patients and families the option to search for members by locations, specialty and/or patient type.

The website also offers continuing education for professionals and educational resources for individuals and families.

Mission: Propionic Acidemia Foundation is dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.

Organization offers educational resources for families and patients, a patient registry, conferences and trainings, online support groups, and more.

The SPD Foundation offers online courses, resources, advocacy, and support groups for professionals, parents, and others interested in helping individuals with Sensory Processing Disorder.

Supports research, public health education, professional health education, patient services, community services, and global organizations. National nonprofit with chapters in multiple states. 

Advocates for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.

Offers support to children and families through interdisciplinary research, technical assistance, professional development, and implementation science. FPG is one of the nation's oldest and largest multidisciplinary centers devoted to the study of young children and their families.

Online Resources Include:

• A variety of clinical and patient resources
• Educational events for clinicians
• Find a Pediatric Endocrinologist: Search the Pediatric Endocrine Society membership list.
• Upcoming Camps: Directory of specialty camps for kids, including Diabetes Camps, Turner Syndrome Camps, and Transgender Youth and Teen Camps. Not run or endorsed by the Pediatric Endocrine Society.

Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.  Offers support groups for people with epilepsy.

Spanish-language line: 866-748-8008

Provides training and education on hearing, hearing loss, and hearing aids.

• Disease/Disability Information
• Health/Disability Related Support Groups

• Communicable Disease Control
• Vaccine Information

• Internet Information Resources
• Disease/Disability Information
• Specialized Information and Referral
• Medical Information Services

• Specialized Information and Referral
• Medical Care Expense Assistance

NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.

Improves the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.

• Health/Disability Related Support Groups
• Disease/Disability Information
• Voluntary Health Organizations

Chapter Finder: Find support and connection in your community.

Works to ensure the best quality of life for those coping with MS by providing comprehensive support and educational programs.

Disease/Disability Information
Information and Referral
Specialized Information and Referral

Nationwide community-based voluntary organization dedicated to eliminating cancer as a major health risk through research, education, advocacy.

Provides advocacy, education, information and referral, support for the Autism community at national, state and local levels through a nationwide network of Affiliates.

Provides ongoing support and direct services to individuals with multiple sclerosis.

Services Include:

• Individual Advocacy
• Information and Referral
• Equipment Distribution Program by application

The Stuttering Foundation provides resources, services and support to those who stutter and their families as well as support for research into the causes of stuttering.

Free packets of informative brochures, referral lists for fluency specialists and a catalog of resources are available.

The Foundation publishes 30 books, 41 DVD videos and 26 brochures on stuttering. Over 800,000 publications are distributed each year to those who stutter, their families, speech language pathologists, pediatricians, family physicians, clinics, day care centers, libraries and others concerned with the problem of stuttering.

Provides support and funding for type 1 diabetes research. Local JDRF chapter serves as the hub of JDRF information and events.

Services Include:

• Informational Guides
• Virtual community
• Local chapters
• Fundraising and social events

National Eye Institute is the principal agency for conducting and supporting vision research aimed at improving the prevention, diagnosis, treatment and rehabilitation of diseases that affect the eye and vision

The MSUD Family Support Group membership includes families and professionals worldwide.

Services Include:

• Providing opportunities for support and personal contact for those with MSUD and their families.
• Distributing information and raising public awareness of MS
• Strengthening the liaison between families and professionals.
• Encouraging newborn screening programs and research for MSUD.

The Childhood RND Educational Foundation is a 501(c)(3) non-profit organization dedicated to educating health professionals and families who deal with amplified musculoskeletal pain syndromes (AMPS) such as fibromyalgia, complex regional pain syndrome (CRPS), RSD, RND, neuropathic pain and myofascial pain. Services include:
-Educational materials about a variety of pain issues
-[https://stopchildhoodpain.org/faqs/what-hospitals-offer-this-treatment-program/ Directory of pediatric AMPS treatment programs.]

Provides online resources and information related to Attention Deficit Hyperactive Disorder (ADD and ADHD) for children, adults, parents, schools, and more.

Provides resources for individuals with thinking and learning differences, including ADHD, dyslexia, and dyscalculia. Information for parents, educators, and young adults. Also offers a workplace program for individuals in the workplace.

Offerings include articles and online resources, information about how to get assistance, and an online community.

Connecting Families UCD Foundation provides resources, information, and support groups for families and individuals with Urea cycle disorders (UCDs).

UCD Family Camps: Connecting Families UCD Foundation hosts annual camps for families affected by a Urea Cycle Disorder. UCD Family Camps are held in different locations across the US so that all families around the country may have an opportunity to attend. Camps are 100% free of charge to UCD families and siblings (any age). All costs of foods (low-pro), lodging, and shuttling to and from airport to camp site is provided as well.

Support group for Fatty Oxidation Disorders. Raises funds for Educational and Networking Services and Programs. Medical information, including information about newborn screening, and support resources.

Resources, information, research information, and support for HCU.

Information about PKU, research, advocacy, and resources.

Find a Clinic by state, zip code, or map.

The goals of the National Urea Cycle Disorders Foundation (NUCDF) are:

• To provide guidance and information to families and others affected by urea cycle disorders.    
• To create a caring community, networking families together for support.    
• To educate healthcare professionals on the identification, diagnosis and treatment of UCD.      
• To stimulate and support research which leads to improved quality of life for today and a CURE for tomorrow.    
• To increase public awareness on the existence of UCDs so that no child or adult ever goes undiagnosed.    
• To educate legislators on the needs of children, adults and families affected by these rare disorders.

AIDS info is a U.S. Department of Health and Human Services (DHHS) project providing information on HIV/AIDS clinical trials and treatment. It is the result of merging two previous DHHS projects: The AIDS Clinical Trials Information Service (ACTIS) and the HIV/AIDS Treatment Information Service (ATIS).

AIDS info is a central resource for current information on federally and privately funded clinical trials for AIDS patients and others infected with HIV. AIDS clinical trials evaluate experimental drugs and other therapies for adults and children at all stages of HIV infection -- from patients who are HIV positive with no symptoms to those with various symptoms of AIDS.

Provides awareness, prevention, and treatment. Under its guiding principles - Education, Advocacy, Research, and Support - the ATA offers prevention programs in schools, urges governmental and private organizations to support hearing conservation, funds the nations brightest researchers, and facilitates self-help groups around the country.

The Foundation aims to improve outcomes for individuals with OCD and related disorders by:

• Providing resources and support for those affected by OCD, including individuals with OCD and related disorders, their family members, friends, and loved ones.
• Promoting awareness about OCD and related disorders to the OCD community and the general public.
• Increasing access to effective treatment through:
  • Educating mental health professionals about evidence-based treatments.
  • Providing a forum for professional collaboration and networking.
  • Supporting research into the causes of and treatments for OCD and related disorders.

Visit https://iocdf.org/find-help/ for help finding providers for patients with OCD,

Provides education for families in identifying development milestones in children from birth to 5 years old. Provides resources and supports (WIC, Early Childhood Intervention, Home-visiting, and Education Materials) for families who may have concerns and how to reach out to a local healthcare provider.

Involved in the research and development of evidence-based behavioral interventions and measurement tools designed to improve care for families and children with autism spectrum disorder (ASD). Also provides the RUBI Autism Network Parent Training program.

Raises awareness of 24 hour posture care management, as a non-invasive, caregiver and family empowering approach improving the quality of life for persons with neuromuscular impairments affecting their motor control and posture. 

Tamara Kittelson, MS, OTR/L, ATP/SMS
Executive and Project Director