Education About Disabilities/Diagnoses

UNM Truman Health Services is a National Committee for Quality Assurance Level 3 Patient-Centered Medical Home. This means our patients always come first. We strive to meet your needs, whether they come before, during, or after hours. Get comfortable, confidential care at UNM Health Services. Whether you need testing, treatment, or primary care, our team of doctors, nurses and behavioral health specialists are here to help.

UNM Truman Health Services provided include:

• Primary and specialty care for people with HIV
• Medication adherence, education, and counseling
• Counseling and psychotherapy
• Diagnostic assessments
• Medication management
• Neuropsychological assessment
• Psychiatric consultation
• Substance use treatment and referral services
• Medical and non-medical case management
• Social support services
• Chiropractic, acupuncture, and medical-massage
• Clinical nutrition

At Presbyterian Medical Services, we believe that the best way to improve community health and well-being is for everyone to work together. To that end, we work collaboratively with community groups, school districts, local providers, hospitals and governments at every level. Together, we develop programs and services that meet the needs of the people living within these communities. And we only expand into communities that invite our involvement.

Our diverse services include primary care, dental, behavioral health, early childhood education, supportive living, and senior programs. To make the greatest impact possible, we concentrate our resources on meeting the needs of underserved areas of New Mexico.

All told, we operate approximately 100 programs in communities throughout the state. Many of the individuals served by Presbyterian Medical Services live at or below the federal poverty level.

Services: Home visits encourage the development of skills and knowledge around infant growth and development, nurturing positive relationships, and creating safe environments. Serves prenatal to 3 years of age.

Eligibility/Ages: Prenatal or newborn under 2 months of age. Available to women having their first child, first-time families, and families adopting their first baby. Serves Rio Arriba County.

To establish a Family Advocacy Center where adult and child victims of interpersonal violence and sexual assault have access to comprehensive, multi-disciplinary services. The focus of the Albuquerque Family Advocacy Center will be to decrease victim trauma and intimidation while providing supportive services in respectful and culturally appropriate ways.

Advantages of a Family Advocacy Center:
a. Victim friendly and victim safe environment (no suspects).
b. Reduces the investigation time for all agencies involved.
c. Reduces the number of interviews from as many as five to one per case, while at the same time increasing the quality of investigations.
d. Eliminates travel time for victims and significantly reduces travel for all service providers.
Improves coordination of multi-disciplinary teams: medical evaluation, forensic, interviews, law enforcement, child/adult protective service investigations, crisis counseling and prosecution.
e. Makes it possible to eliminate language and cultural barriers to service across all service systems.
f. Increases the number of convictions, guilty pleas and plea bargains through the appropriate prosecutorial divisions.

For after hours assistance:

FOR EMERGENCIES, PLEASE CALL 911
For Non-emergencies, please call (505) 243-2333
After hours, the Albuquerque Family Advocacy Center phone number (505) 243-2333 will be answered by victim advocates who can assist or make referrals to address your crisis situation. For basic or non-emergency contact with service providers please call back Monday through Friday, 8:00 am to 5:00 pm.

We are a Trauma Informed Agency whose main focus is to help Victims of Domestic Violence break the cycle of abuse in their lives. Each department, Advocacy, Case Management & Counseling are all here to provide resources, help, guidance and support to help victims get safe, become independent and heal. Our goal is to help a victim break the cycle of violence and heal in order to have healthy relationships in their future. DVRC, Inc. is here to Empower Victims of Domestic Violence and Engage the Community to End the Cycle of Domestic Violence through Education and Prevention. We work with multiple community organizations to help provide resources, legal help, financial resources and help in order to get a victim safe & work with them to rebuild their life after domestic violence.

We are committed to protecting the safety of adults who are not able to protect themselves and to promoting the personal choice and self-determination of all we serve.

If you suspect an adult is being abused, neglected, or exploited, call Adult Protective Services Statewide Intake, toll-free at 1-866-654-3219 or 1-505-476-4912.

New Mexico has a “Duty to Report” provision in the Adult Protective Services Act (27-7-30) which states: “Any person, or financial institution, having reasonable cause to believe that an incapacitated adult is being abused, neglected or exploited shall immediately report that information to Adult Protective Services.” Adult Protective Services remains on call for emergent reports of adult abuse, neglect, and exploitation 24 hours a day, 7 days a week.

There are 5 Adult Protective Services Regions serving all 33 counties of New Mexico.

Receives reports of alleged abuse, neglect, self-neglect or
financial exploitation and determines if the client is eligible.
a. Investigates the allegations through interviewing the client, collateral contacts, alleged abuser(s) and through examining, evidence such as medical and bank records.
b. Addresses emergency needs for food, shelter or law enforcement protection,
c. Determines whether abuse is occurring or not. If it is not, the case is closed,
d. If it is, develops a case plan, with the client, to stop the abuse, and to address the client’s health and safety needs through services such as medical or mental health treatment, housing assistance, legal assistance, financial assistance, personal care, and home delivered meals.

The New Mexico School for the Blind and Visually Impaired (NMSBVI) provides statewide direct services to families of young children who have a diagnosed visual impairment or who are considered to be at risk for receiving a VI diagnosis. Services are a partnership with NMSBVI, New Mexico’s Family, Infant, Toddler Program (FIT), and the Navajo Nation; all children are served by IFSP team decision. Services are delivered in the family home or in another community environment that supports the child and his/her family.

(*Note: Contact Julie Maner who is the Program Coordinator for more information at 505-859-0646 (email: JulieManer@nmsbvi.K12.nm.us) or call 1-800-437-3505 to get a referral for your child).

AIDC is the Albuquerque Area's only IHS Urban dental clinic. We treat the dental health of:
a. Children (a parent or guardian is required to attend appointments with children under 18),
b. Adults up to age 30
c. Pregnant women
d. Adults for emergency care
&
Our friendly and professional staff is excited to make AIDC your family's dental home. We provide:

a. Preventive and Routine Dental Services for children and adults up to age 30
b. Braces (referral required)
c. Pregnant Woman Dental Exams
d. Same Day Emergency Dental Care (for children and adults of any age)

Pediatric Specialty Care for Children and Youth with Special Health Care Needs, Developmental Disabilities, and Medical Complexity. Provides a nurturing and supportive environment to care for children (birth to 21 years old) with Special Needs, Developmental Disabilities and/or Complex Care in Albuquerque and throughout New Mexico.

TEASC provides in-home services for New Mexicans age 18 and older with developmental or intellectual disabilities. Patients or their families can request a TEASC consultation. Providers or advocates can also request a referral.

Specialized TEASC providers can visit your home or see the patient in a UNM Family Practice or community clinic. We offer a range of medical and mental health care services, as well as help with support system needs.

TEASC services are provided at no cost to the individual. We are funded by the New Mexico Department of Health/Developmental Disabilities Supports Division.

Elderly Service. Provides home health care, respite, short and long-term care in Curry, Chaves, Lincoln, and Quay counties.

Welcome to Children’s Medical Services. We are the go-to for families who have a child or youth with special health care needs (CYSHCN). Children and Youth with Special Health Care Needs means an individual younger than 21 years old, experiencing a moderate to severe medical condition:

1. With significant potential or actual impact on long term health and ability to function
2. Which requires specialized health care services and/or a variety of services from multiple diverse systems.

Services for CYSHCN birth to 21 years of age:

Care coordination for children and their family.
Access to Multidisciplinary Pediatric Specialty Clinics.
Care for children with a genetic condition.
Follow-up care for children who are deaf or hard of hearing.

For those who meet financial and medical eligibility guidelines:
Payment for medical services, procedures, medications, and supplies.
Payment of premiums, deductibles, and co-pays for the New Mexico Medical Insurance Pool.
Payment for diagnostic services and care coordination.
If you have questions about eligibility or for more information, see our CMS Brochure or contact your local Children's Medical Services office. Please see our CMS Contact Information document for a list of locations.

Visit the Families or Providers section of our website for more specific information, tools, and resources.

UNM Health’s Carrie Tingley Hospital (CTH) has been providing compassionate, coordinated health care to children and adolescents with complex musculoskeletal and orthopedic conditions, rehabilitation needs, developmental issues and long-term physical disabilities for more than 70 years.

HME Specialists provide services for durable medical equipment, rehabilitation and mobility, home infusion therapies, nutrition products and services, bariatric products and services, respiratory products and services, wound care services, and medical supplies.

Locations include Albuquerque, Albuquerque West Side, Albuquerque Masthead, Santa Fe, Farmington, Las Cruces, Clovis, Las Vegas, Gallup, Hobbs, Silver City, Roswell, and El Paso.

NSM supports individuals mobility, accessibility, and servicing.

Our expert team will collaborate with you to determine the mobility solutions to best support physical and functional skills, daily activities, and accessibility in and around your home and life.

Our certified professionals work with industry-leading suppliers to choose the best products for your needs. From evaluation to installation and routine maintenance, we help you access life.

Our experienced technicians stand ready to assist you and guide you through the process of having your mobility device serviced or repaired.

NMSBVI Albuquerque offers statewide outreach and preschool/kindergarten education services.

Preschool/kindergarten is part of NMSBVI’s continuum of services offered to children throughout each stage of growth and development. The Preschool and Kindergarten Program serves children who are blind or visually impaired between the ages of 3 and 6 from Albuquerque and the surrounding areas. Students are required to have a diagnosed vision impairment that adversely impacts their capacity to learn in a more traditional classroom. All students are placed in the program by IEP committee decision held by the student’s resident public school system.

The academic program for Preschool and Kindergarten consists of literacy (print and Braille), math, concept development, socialization and all aspects of the expanded core curriculum for blindness. Students are encouraged to explore and to become familiar with their immediate environment; then expand outward to travel successfully into new and unfamiliar areas. Guided exploration and self-discovery are used to support learning at every level. All children are placed in the preschool programs by IEP team decision because they require daily support from a teacher of the visually impaired

The Preschool and Kindergarten Program offers additional services to students who qualify. These services include:
Classroom instruction from Teachers of the Visually Impaired
Orientation and Mobility instruction
Speech-Language Therapy
Physical Therapy
Occupation Therapy
Nursing
Social Work
Audiology
Transportation

We provide registered nurse case management/service coordination services statewide for medically fragile children and their families since 1985.
In New Mexico, children who have a high level of dependence on medical technology such as ventilators, tracheostomies, oxygen, feeding tubes, dialysis, intravenous medication and require total care for all their daily needs are identified as medically fragile.

Medically Fragile Case Management Program (MFCMP), the Medically Fragile Waiver, and community services support families in their decision to care for their medically fragile child in their home.

Information specialists provide callers with fact sheets, resources and referrals to other organizations and agencies. Topics include hearing, balance, smell and taste, voice, speech, and language disorders.

A national organization serving children, individuals and families affected by Tourette Syndrome (TS) and other tic disorders. Comprehensive online information includes six online CME/CNE programs, programs on Recognition, Diagnosis & Treatment, and training for Allied Professionals and Educators. The website also contains resources for patients and families.

Find a Provider: Directory of experts in Tourette Syndrome that can be filtered by age group, clinical expertise (specialty), and location.

Tourette Syndrome Centers of Excellence: List of Centers of Excellence in the care of Tourette Association, recognized by the Tourette Association of America as promoting the highest level of care, research, education & training, and advocacy & awareness for these conditions.

A multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.

AACPDM Medical Professional Directory offers patients and families the option to search for members by locations, specialty and/or patient type.

The website also offers continuing education for professionals and educational resources for individuals and families.

Mission: Propionic Acidemia Foundation is dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.

Organization offers educational resources for families and patients, a patient registry, conferences and trainings, online support groups, and more.

The SPD Foundation offers online courses, resources, advocacy, and support groups for professionals, parents, and others interested in helping individuals with Sensory Processing Disorder.

Offers support to children and families through interdisciplinary research, technical assistance, professional development, and implementation science. FPG is one of the nation's oldest and largest multidisciplinary centers devoted to the study of young children and their families.

Online Resources Include:

• A variety of clinical and patient resources
• Educational events for clinicians
• Find a Pediatric Endocrinologist: Search the Pediatric Endocrine Society membership list.
• Upcoming Camps: Directory of specialty camps for kids, including Diabetes Camps, Turner Syndrome Camps, and Transgender Youth and Teen Camps. Not run or endorsed by the Pediatric Endocrine Society.

Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.  Offers support groups for people with epilepsy.

Spanish-language line: 866-748-8008

Starkey Hearing Foundation uses the gift of hearing to reflect caring and sharing and improve the lives of individuals, families and communities.

COVID-19 UPDATE: Following all CDC and State guidelines.

• Hearing Aids

• Disease/Disability Information
• Health/Disability Related Support Groups

• Communicable Disease Control
• Vaccine Information

• Internet Information Resources
• Disease/Disability Information
• Specialized Information and Referral
• Medical Information Services

• Specialized Information and Referral
• Medical Care Expense Assistance

NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.

Improves the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.

• Health/Disability Related Support Groups
• Disease/Disability Information
• Voluntary Health Organizations

Chapter Finder: Find support and connection in your community.

Nationwide community-based voluntary organization dedicated to eliminating cancer as a major health risk through research, education, advocacy.

Provides advocacy, education, information and referral, support for the Autism community at national, state and local levels through a nationwide network of Affiliates.

Provides ongoing support and direct services to individuals with multiple sclerosis.

Services Include:

• Individual Advocacy
• Information and Referral
• Equipment Distribution Program by application

The Stuttering Foundation provides resources, services and support to those who stutter and their families as well as support for research into the causes of stuttering.

Free packets of informative brochures, referral lists for fluency specialists and a catalog of resources are available.

The Foundation publishes 30 books, 41 DVD videos and 26 brochures on stuttering. Over 800,000 publications are distributed each year to those who stutter, their families, speech language pathologists, pediatricians, family physicians, clinics, day care centers, libraries and others concerned with the problem of stuttering.

National Eye Institute is the principal agency for conducting and supporting vision research aimed at improving the prevention, diagnosis, treatment and rehabilitation of diseases that affect the eye and vision

The MSUD Family Support Group membership includes families and professionals worldwide.

Services Include:

• Providing opportunities for support and personal contact for those with MSUD and their families.
• Distributing information and raising public awareness of MS
• Strengthening the liaison between families and professionals.
• Encouraging newborn screening programs and research for MSUD.

The Childhood RND Educational Foundation is a 501(c)(3) non-profit organization dedicated to educating health professionals and families who deal with amplified musculoskeletal pain syndromes (AMPS) such as fibromyalgia, complex regional pain syndrome (CRPS), RSD, RND, neuropathic pain and myofascial pain. Services include:
-Educational materials about a variety of pain issues
-[https://stopchildhoodpain.org/faqs/what-hospitals-offer-this-treatment-program/ Directory of pediatric AMPS treatment programs.]

Provides online resources and information related to Attention Deficit Hyperactive Disorder (ADD and ADHD) for children, adults, parents, schools, and more.

Provides resources for individuals with thinking and learning differences, including ADHD, dyslexia, and dyscalculia. Information for parents, educators, and young adults. Also offers a workplace program for individuals in the workplace.

Offerings include articles and online resources, information about how to get assistance, and an online community.

Connecting Families UCD Foundation provides resources, information, and support groups for families and individuals with Urea cycle disorders (UCDs).

UCD Family Camps: Connecting Families UCD Foundation hosts annual camps for families affected by a Urea Cycle Disorder. UCD Family Camps are held in different locations across the US so that all families around the country may have an opportunity to attend. Camps are 100% free of charge to UCD families and siblings (any age). All costs of foods (low-pro), lodging, and shuttling to and from airport to camp site is provided as well.

Support group for Fatty Oxidation Disorders. Raises funds for Educational and Networking Services and Programs. Medical information, including information about newborn screening, and support resources.

Resources, information, research information, and support for HCU.

Information about PKU, research, advocacy, and resources.

Find a Clinic by state, zip code, or map.

The goals of the National Urea Cycle Disorders Foundation (NUCDF) are:

• To provide guidance and information to families and others affected by urea cycle disorders.    
• To create a caring community, networking families together for support.    
• To educate healthcare professionals on the identification, diagnosis and treatment of UCD.      
• To stimulate and support research which leads to improved quality of life for today and a CURE for tomorrow.    
• To increase public awareness on the existence of UCDs so that no child or adult ever goes undiagnosed.    
• To educate legislators on the needs of children, adults and families affected by these rare disorders.

AIDS info is a U.S. Department of Health and Human Services (DHHS) project providing information on HIV/AIDS clinical trials and treatment. It is the result of merging two previous DHHS projects: The AIDS Clinical Trials Information Service (ACTIS) and the HIV/AIDS Treatment Information Service (ATIS).

AIDS info is a central resource for current information on federally and privately funded clinical trials for AIDS patients and others infected with HIV. AIDS clinical trials evaluate experimental drugs and other therapies for adults and children at all stages of HIV infection -- from patients who are HIV positive with no symptoms to those with various symptoms of AIDS.

The American Tinnitus Association (ATA) is the national champion of tinnitus awareness, prevention, and treatment. Under its guiding principles - Education, Advocacy, Research, and Support - the ATA offers prevention programs in schools, urges governmental and private organizations to support hearing conservation, funds the nations brightest researchers, and facilitates self-help groups around the country.

The Foundation aims to improve outcomes for individuals with OCD and related disorders by:

• Providing resources and support for those affected by OCD, including individuals with OCD and related disorders, their family members, friends, and loved ones.
• Promoting awareness about OCD and related disorders to the OCD community and the general public.
• Increasing access to effective treatment through:
  • Educating mental health professionals about evidence-based treatments.
  • Providing a forum for professional collaboration and networking.
  • Supporting research into the causes of and treatments for OCD and related disorders.

Visit https://iocdf.org/find-help/ for help finding providers for patients with OCD,

Provides education for families in identifying development milestones in children from birth to 5 years old. Provides resources and supports (WIC, Early Childhood Intervention, Home-visiting, and Education Materials) for families who may have concerns and how to reach out to a local healthcare provider.

Involved in the research and development of evidence-based behavioral interventions and measurement tools designed to improve care for families and children with autism spectrum disorder (ASD). Also provides the RUBI Autism Network Parent Training program.